Any EDS hypermobile types that have had ablation?

I now have permanent and persistent atrial flutter. I’m on very high doses of flecainide (150mg BID and diltiazem ER 120 mg BID, plus Eloquis. I cannot tolerate metoprolol.)
I’m also a hypermobile Ehlers Danlos patient, female, 71 years old. Vascular EDS has been ruled out by genetic testing.

Over the last four years, my PVCs have increased, then one or two incidents of atrial flutter per year, controlled with meds and ER conversions. Until this last December when the atrial flutter did not stop for two weeks and any attempts by ER to convert failed.

My cardiologist/electrophysiologist has me scheduled for flutter ablation. Normally this is an out-patient procedure, but everything I’ve been reading about EDS hypermobile and ablation makes it extremely risky.

I’m petrified of a bad outcome on the table, but my local hospital is run by hospitalists who determine who is admitted for observation and who is not. Add to it that the doctor who will actually do the procedure thinks that he knows what EDS is “oh yes… you’re flexible!” and I am petrified.

Something has to be done because I cannot drive on the meds they’ve increased me to, plus the blood thinner makes me dizzy and woozy. I’m pretty much stuck on the couch. When I try to get up to do normal chores my heart races and pounds.

We are very limited on cardiology care in our small towns, and although I trust my referring cardio, no one seems overly concerned about the EDS involvement.

Is there anyone here who has EDS hypermobile type that has any experience with an ablation or do you know a cardiologist that I could perhaps pay for a telephone consultation? I’ve not found any on the EDS National Foundation referral website.