Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

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Profile picture for sillytilly @sillytilly

Is anyone using Ohtuvayre for chronic bronchitis?

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yes. And after 30 days no improvement at all. Doc says keep trying.

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Profile picture for tschoch @tschoch

yes. And after 30 days no improvement at all. Doc says keep trying.

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I have been taking it for 60 days and it seems to be helping me. It is breaking up the excess mucus/phlegm so I can cough it up.

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Profile picture for sillytilly @sillytilly

Is anyone using Ohtuvayre for chronic bronchitis?

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Now told after 40 days to stop as there is no result. And thats it. No other help offered.

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Profile picture for sillytilly @sillytilly

Is anyone using Ohtuvayre for chronic bronchitis?

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Results so far from so many I have communicated with have bee poor, no results etc. Makes you wonder what the FDA was thinking and even more all the hype!
I am soo disappointed! It sounded so promising.

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Profile picture for kdalda75 @kndaustin71

You're correct! However, clinicians have expressed a belief that if Daliresp is added to Ohtuvayre it will enhance the effects of the PDE 4 .....Many are attempting to relieve symptoms in this manner. but will have to question the practitioners a little more in whether or not it has been effective.

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I’m still waiting for ohtuvare. Really Discouraged by negative comments. Isn’t there anyone that it helped??
I was on daleresp a few years ago. Had to discontinue after a few months due to severe side effects.

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I too am concerned with the information that I have read on the lack of response for those that have COPD. Such big Hype, over nothing. FDA should be ashamed of themselves. No there is no one to trust.

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I have been on it Ohtuvayre for about 2 months it does open my airways to help me breathe better for a few hrs & still feeling like a guinea pig testing the Script I noticed recently I have been coughing up more phlegm,but it’s been cooler here in Florida & been walking my dog more….

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I'm a little concerned re the hype and such that surrrounded Ohtuvayre as I have not heard many positive remarks and outstanding results that have occurred. The literature doe not address at what point one could experience in breathing easier, when one should expect improvement etc. Did the FDA truly scrutinize this medication before approval I think it was alot of hype.....especially after Dupixent was approved as well with those with copd, however only if they too had type II inflammation.

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Prescribed it , used it 6 weeks, crashed. Three days in hospital. Back, more or less normal. Not definite it was O2 etc.

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Profile picture for sillytilly @sillytilly

Is anyone using Ohtuvayre for chronic bronchitis?

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Yes, on 6 weeks. Crashed. Four days in hospital. More or less on old meds, back to normal. Not really definite was O2, but off. And never saw an effect of any kind.

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