Lung Matters Protocol

Posted by lvnl @lvnl, Jun 27, 2024

Hi, the info shared here has been so helpful as I'm now diagnosed with MAC after quite a few years of asymptomatic bronchiectasis. I see some back and forth about Lung Matters Protocol, could someone post the actual site (url)? Googling turns up several confusing results.
Thank you.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

scoop | @scoop | Jan 7 4:22pm

In reply to @heathert "Hi Sue, can you pplease give me Dr Faulkinhams website, Lung matters says he has changed..." + (show)

@becleartoday has really kept on top of these things. Perhaps she knows more?

becleartoday | @becleartoday | Jan 7 5:16pm

Hi Scoop,
Sorry, I misunderstood the question. See comment . Linda

scoop | @scoop | Jan 7 5:46pm

In reply to @becleartoday "Hi Scoop, Sorry, I misunderstood the question. See comment . Linda" + (show)

The question was about a new position by Dr. Falkinham and baby bottle sterilizers. Reportedly, he said recently that the only sure way to sterilize our equipment is to boil it for 10 minutes. This is contrary to what a lot of people here think and have been doing. I wondered if you had a pulse on that.

becleartoday | @becleartoday | Jan 7 6:12pm

Dr. Falkinham has endorsed the use of steam baby bottle sterilizers and provided supporting research, including studies conducted by the head of the Yale New Haven Hospital laboratory. These studies confirm that steam sterilizers are effective in killing bacteria, including mycobacteria. To my knowledge, there has been no change in his stance on this matter.

Sue, Volunteer Mentor | @sueinmn | Jan 7 7:08pm

In reply to @heathert "Hi Sue, can you pplease give me Dr Faulkinhams website, Lung matters says he has changed..." + (show)

Dr Falkinaham frequently participates and answers questions here:
https://connect.ntminfo.org/communities/community-home?CommunityKey=ea692b2f-f94b-4057-a50d-955dfaeeb9df
Just join the forum to ask him directly. It might take a bit to get his answer.

Also, here is a report from a former NJH researcher:
https://pubmed.ncbi.nlm.nih.gov/32729958/
I cannot find anything, anywhere to indicate Dr F has changed his position

heathert | @heathert | Jan 8 2:13am

In reply to @sueinmn "Dr Falkinaham frequently participates and answers questions here: https://connect.ntminfo.org/communities/community-home?CommunityKey=ea692b2f-f94b-4057-a50d-955dfaeeb9df Just join the forum to ask him..." + (show)

Thanks Sue I cannot find anything different either. Thanks for that information My application to join the group is being activated.

Sue, Volunteer Mentor | @sueinmn | Jan 8 8:04am

In reply to @heathert "Thanks Sue I cannot find anything different either. Thanks for that information My application to join..." + (show)

Maybe you can ask to be referred to this new information, but if I recall correctly their position has always been boiling is the only way.

heathert | @heathert | Jan 8 3:00pm

In reply to @sueinmn "Maybe you can ask to be referred to this new information, but if I recall correctly..." + (show)

oh ok, iI have just joined recently. I did ask but it was not answered.

pacathy | @pacathy | Jan 9 9:50am

In reply to @heathert "oh ok, iI have just joined recently. I did ask but it was not answered." + (show)

I recently got the Bololo and love it. I do wash, rinse equipment. I was a little concerned about it being hot enough and used my cooking thermometer on a steam vent to verify temp. 😀

lilianna | @lilianna | Jan 9 10:39am

I tried to open the NTMinfo link but you need a log in. How do you get access to it

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