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MGRS (monoclonal gammopathy of renal significance): Let's connect
I was recently diagnosed with MGRS. My hematologist said that this is very rare but treatable. Started chemotherapy 3 weeks age consisting of CyBorD therapy once per week for 26 weeks. Anyone out there with a similar diagnosis? I would like to hear about your experience and progress. Overall, I feel fine but have low hemoglobin (8. 3) and high creatine (2.4) In time I hope to improve kidney function with this treatment.
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Hi!
I've had a very similar situation as you.
I started the Cy/Bor/D
treatment as well.
I started treatment in July of 2022 and finished Aug 2023.
I had a drug induced psychosis due to the dex after a couple if months and was hospitalized for 3 weeks til it was determined and I was stabilized. Then I restarted the treatment in Dec without the dex.
It has gone really well and I feel good. Any of my blood work such as Hemoglobin, GFR, and creatine has been steadily rising.
My Lamba and Kappa light chain levels are rising and I do suspect sometime in the future
I will be back for another chemo treatment.
How are you doing now? Lori