Stage 1, very treatable invasive lobular carcinoma

Thanks I will try tonight.

I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions in my brain. I had to take a high dose of prednisone to see if it could possibly shrink the lesions before they say it’s cancer in my brain. I have to wait 2 months to see if medication shrinks it. Meeting first time with my cancer doctor on Wednesday. This is so scary

I have invasive tubular carcinoma in both breast and maybe cancer in the brain. I’m meeting with the surgeon on Wednesday for the first time. I’m praying to make good decisions and for the doctors to be able to help me. This is scary

Self-care time…meaning, you’ll have this fear until more info comes, but go where you find comfort to get through this hardest of waiting time. For me—a bookstore or three, lots of nature walks (or sits, with a snack!), or a museum. Don’t sit and overthink. Love and hugs to you❣️

@reid123 Wishing you the best as you meet with the surgeon and find out more about treatment!

If you don’t have a list of questions to ask, here are two links that give good info. The Susan B Komen site has printable pages that you can take with you.
https://www.cancer.org/cancer/types/breast-cancer/understanding-a-breast-cancer-diagnosis/questions-to-ask-your-doctor-about-breast-cancer.html
https://www.komen.org/support-resources/tools/questions-to-ask-your-doctor/
If you’ve been reading answers from this site you’ll see many people request a second opinion. It is often helpful to the local doctor to be able to confer with others in the field. Good doctors welcome collaboration with their peers.
It is usually not too expensive and most insurance companies will pay for a second or third opinion. The Mayo Clinic, Memorial Sloan Kettering, Massachusetts General, MD Anderson, and Stanford all do second opinions. Most have a link on their webpage to find out details of how to make that happen.

Will keep you in my prayers on Wednesday!

@reid123 :

I am so sorry for what you've been through;( My heart and prayers go out to you upon reading this post...

Pray for the wisdom, comfort and peace of mind coming from above for you and your care team. I know this is very hard to wait, but please allow your physicians to investigate further without too much stress; because those lesions in your brain may turn out to be benign. You are in our thoughts and prayers, my comrade!

Wishing you the best for the journey ahead!

Indeed THAT decision is very important and difficult to make. I had the same as you and had to make that decision. I was diagnosed June 2024 and had "Lumpectomy" on Sept 12, 2024. Lots done on me/for me before going into surgery as I wanted to be able to make an informed decision. I did the Genealogy Testing, no problem there. I did ultrasound of the left breast, nothing there. I had biopsies done to check margins both in my 2-tumor breast and in my lymphs under my arm, and nothing there. I did the BRACA test, nothing there. So, based on Stage 1, nothing bad in any of the tests I had done, I opted for the lumpectomy! Just make sure you have ALL the information you need to make the decision. I'm just hopping on here now so I believe by now you've probably already proceeded, and I do hope you are happy with your decision. I then had 21 radiation treatments which I just finished on 12/31/24 (Happy New Year to me!) and now taking Anastrozole for 5 years. God bless you.

Hello Kandisn- I don't know what year you did this lumpectomy. The only date I see is January 24th, no year. Or, it could just be that my brain is spinning after recent positive Invasive Lobular cancer and I'm missing the year. I am also choosing to just the lumpectomy w/radiation. Knowing full well genetic testing or additional biopsy might change things. I'm scheduled for this coming Thursday (5th). Sentinel node will be checked at the same time. Monday, I have the smartclip inserted. Thursday is surgery. I am curious how your lumpectomy went and if there were any surprises? I am told I will need an MRI w/contrast once a year. I feel that is my insurance for any future breast cancer. I could just be naive since I'm just starting the journey. I hope you are doing well.

My lumpectomy went very well, it was out patient, and I had no pain. After surgery I healed very well, and started 2 weeks of radiation, 1 week of full breast radiation and 1 week of partial radiation where my tumor was. I did well, no burning ,just brown skin. Then I went on Alendronate on April 1st, that will be for 5 years. I will see my oncologist in July. I was very impressed with all of my team of doctors. Hope your surgery goes well. I also had them check lymph nodes. I chose to take the genetic test and do not carry the gene or I would have had a mastectomy. I will have a mammogram in November and then 6 months later have a MRI, that’s what they suggest if you have dense breasts. Good luck with your surgery and your radiation, hope it goes as well as mine.

I don’t mean alendronate , I meant Anastrolzole.