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@keyster1976

Hello all just found out 2 months ago that I have HOCM. I have never had so many tests in my life. Have a surgical consult on 4-2 to have a defibulator installed and septal myectomy surgery.

I have scared myself half to death with all of the videos and articles that I have read in the last 2 months. One that I watches yesterday made me finally say if they say yes t o septal myectomy I am all in.

The question that was asked was about how is HOCM affecting your life. I have been looking at it and did not really realize how many activities I avoid doing. I looked back to 3 years ago to now and it is dramatic. Last summer I was unable to mow more than a quarter of my lawn at a time without feeling like I was going to die. I love to ice fish and I don't go now unless we can drive on the ice as I can not walk a mile.

I just hope that with surgery I will be normal again. Want to do things with my kids and don't because I become out of breath.

Here is to hope of new and invigorated life!

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Replies to "Hello all just found out 2 months ago that I have HOCM. I have never had..."

Hi @janicepike -- if you are referring to my post, I meant it as a reply to what @cynaburst said. Please take no offense -- I meant none. Just reassurance for @keyster1967 that Dr. Said is well-qualified to perform septal myectomy. This surgery is scary to undertake (as perhaps all surgeries are), and I just wanted to reassure people that all three doctors are very well trained and qualified. 🙂

Hi@deannaconstans, I am from India and diagnosed with hcm. I do not have enough money to travel USA Mayo clinic. Can I get a chance to be treated there at free of cost. Can you help me positively.