Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

@ninha06

Hi Linda, I glad to hear it. What are the sizes and location of your meningiomas? Take care.

Jump to this post

@ninha06, welcome. Have you also been diagnosed with a meningioma? How are you doing?

REPLY
@colleenyoung

@ninha06, welcome. Have you also been diagnosed with a meningioma? How are you doing?

Jump to this post

Hi @colleenyoung, unfortunately, I have. Last October I was incidentally diagnosed with a 2.5cm meningioma behind my right eye, thank God it is not pressing my optic nerve, it shows a bit of calcification, so I hope it grows very slowly if at all. I'm asymptomatic and on surveillance till April, but I am freaking out, I am suffering with anxiety and depression. I am soooo afraid of the surgery that I am thinking about GammaKnife instead. I'm in Canada so here is more complicated to choose your physicians and treatments since the healthcare system is public. Could someone tell me more about the pros & cons of Gamma Knife? Thanks.

REPLY
@brankintx

I saw my oncologist yesterday. Thankfully the area where the gamma tile was placed worked no new growth i was told the area behind my eye was previously radiated was not surgically removed because the neurosurgeon thought it would cause too much damage i asked if there was something i could do to slow growth he told me to ask my neurologist

Jump to this post

I have never heard of a gamma tile. I will look that one up.

REPLY
@ninha06

Hi @colleenyoung, unfortunately, I have. Last October I was incidentally diagnosed with a 2.5cm meningioma behind my right eye, thank God it is not pressing my optic nerve, it shows a bit of calcification, so I hope it grows very slowly if at all. I'm asymptomatic and on surveillance till April, but I am freaking out, I am suffering with anxiety and depression. I am soooo afraid of the surgery that I am thinking about GammaKnife instead. I'm in Canada so here is more complicated to choose your physicians and treatments since the healthcare system is public. Could someone tell me more about the pros & cons of Gamma Knife? Thanks.

Jump to this post

@ninha06, here's more information about gamma knife available in Toronto, Canada, where they have great specialists in brain surgery at the Krembil Barin Institute, part of the University Health Network (UHN) https://www.uhn.ca/Krembil/Clinics/Gamma_Knife

You might also be interested in reading the comments on these related discussions about Gamma knife
https://connect.mayoclinic.org/group/brain-tumor-support-group/?search=gamma+knife#discussion-listview
You might start here:
- - Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

REPLY
@cscmaryann

I have never heard of a gamma tile. I will look that one up.

Jump to this post

@cscmaryann, Gamma Knife is a type of stereotactic radiosurgery (STS) used to treat tumors, veins that have developed differently than usual and other differences in the brain.

Similar to other types of stereotactic radiosurgery (STS), Gamma Knife radiosurgery is not a standard surgery because there is no cut, called an incision You can read more here: https://www.mayoclinic.org/tests-procedures/brain-stereotactic-radiosurgery/about/pac-20384679

REPLY
@lindajean

A brief update......I just had an MRI and once again, no change in my 2 Meningioma's.......Now 17 years of Watch and Wait with NO needed surgery!!!!! Just wanted to share so others are not so afraid if they are on a watch and wait for years 🙂

Jump to this post

Happy to hear this great news! Hopeful!

REPLY
@colleenyoung

@ninha06, here's more information about gamma knife available in Toronto, Canada, where they have great specialists in brain surgery at the Krembil Barin Institute, part of the University Health Network (UHN) https://www.uhn.ca/Krembil/Clinics/Gamma_Knife

You might also be interested in reading the comments on these related discussions about Gamma knife
https://connect.mayoclinic.org/group/brain-tumor-support-group/?search=gamma+knife#discussion-listview
You might start here:
- - Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

Jump to this post

Thank you so much!

REPLY
Please sign in or register to post a reply.