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MDS and cognitive decline

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (22)

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@pixiesusan

How long ago was your transplant? I, too, have the TP53 gene, and I feel like I have a ticking time bomb in me. Right now, I'm not at the point where I can get a transplant, but that day will come.

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Replies to "How long ago was your transplant? I, too, have the TP53 gene, and I feel like..."

pixiesusan- I had my transplant April 9, 2024. I had it done at the City of Hope in Duarte. I found this site when i was first diagnosed and Lori and others walked me through diagnosis and treatment. I hope you see a hematology Dr. who will monitor. During the breast cancer of July 2021 till final treatment in June of 2023 I had blood test every 3 weeks. No one flagged my blood numbers. That my white cells and platelets had not recovered in August and were in fact still dropping below minimums. I had had a blood clot follow the BC surgery so i contacted the vascular department to make an appointment with hematology. Three weeks later i got call from a great person on the appointment line who got the ball rolling.
The Doctors monitoring and a bone marrow biopsy will let you know when the time may be right.