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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
My Name is Jenniffer. Im a 46 year old with Porphria and hemomchromotosis. My interests are my family, gardening and playing cards. I'm hoping to connect with others who share in my diagnosis and build friendships and support.
Replies to "My Name is Jenniffer. Im a 46 year old with Porphria and hemomchromotosis. My interests are..."
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Welcome to Connect, @ruettj, We're so glad you've joined us!
Jennifer, might I suggest that you also post your message in the Digestive Health group on Connect, https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/.
That way you will be able to meet other members with similar conditions, since we have a few active discussions about hemochromatosis in Digestive Health:
– https://connect.mayoclinic.org/discussion/my-husband-inherited-hemochromatosis-diagnosis-about-a-yr-ago-that-required/
– https://connect.mayoclinic.org/discussion/looking-for-advice-i-am-37-years-old-for-the-last-two-years/
You could post your message in either of the above discussions, and the members in that group will be notified of your post. Or, you could start a new discussion.
@ruettj, if you are comfortable, would you share a few more details about the Porphyria you've mentioned? I like playing cards as well...I'm not sure about the exact name of the game, but I love "3-card poker". Do you have a favorite?