I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity syndrome. I was diagnosed in 2014 and required plasmapheresis prior to treatments.
If you have not already done so, I recommend that you contact the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). Once you join, they will send you a New Member Packet. Any information you share with them is confidential and the educational materials are available online and, if need be, you can receive paper copies.
I happen to be a support group leader for the MN/W.WI Support Group. I had four different treatments, starting in 2014.
We are all different. The IWMF connects you with the WM community worldwide. Do not hesitate to contact me if you have questions or concerns and need direction.