PS I'm having a colonoscopy on the 11th of this month to see what's going on there.Fitchizumi

Hello,. I made my own.appointment with a Dr. Schaff, the surgeon. I was advised by my endro to see my cardiologist, because my thyroid condition was up to the max level. I happen to run across a mayo webinar, of my Icd, doctor/ genetic testing, and Dr.Schaff. I then called and made an appointment for a surgery consult. Whala!!! . Hade the surgery January 9th, of this year. A miraculous recovery, and no looking back. So thankful that I am not shy about advocating for myself. Energy level had tripled, my whole outlook is better. One of the key factors in my decision to go ahead with the surgery was insurance was great, and I was still healthy enough to withstand a major surgery.

Thanks so much for updating us, @fitchizumi. Mentor @cynaburst has often underlined the fact that "you would be best served to find a cardiac team that specializes in HCM." I'm glad you are consulting a specialist. I wish you the best of luck, and do let us know of your progress, or if you have any questions.

When I wrote to you in June I could walk 1/2 to 3/4 of a mile. Now it's about one city block and not every day.We still don't understand what ejection fraction is or gradient. Could someone explain this to us I'm not good at reading the echoes.

Here is a link which explains ejection fraction: It is basically the force with which the heart pumps blood into the body. http://www.mayoclinic.org/ejection-fraction/expert-answers/faq-20058286

Gradient is the pressure gradient across the left ventricular outflow tract. It is measured in millimeters of mercury. If you picture a garden hose that is kinked, the force of the water is stronger near the kink. The same is true of the heart and blood. The obstruction causes an increase in the force of the blood flow through the mitral valve. http://www.4hcm.org/content.asp?contentid=154

Hi, thank you so much for the information it make sense now. Fitchizumi

Hi everyone, I want to see a specialist for HCM. He said since my echoes are all over the place I need to have an MRI.That Takes Pl., November 15th. He said he would call me with the results .I felt very comfortable .director of sports cardiology & HCM program ,
Director of cardiovascular imaging .So we will go from there. I feel so much better don’t seem to be as exhausted these past four days. I’m sure it’s psychological my best everyone I’m keeping you in my good thoughts and prayers .

I have some complications For a myectomy, SYRINGOMYELIA c-spine, affecting right trunk and extremities, five water filled cysts in my liver left lobe. I’m wondering if they would even consider me lots of nerve pain and diminished sensation.I’m very mobile so that’s no problem had problems since age 24 years. Any thoughts?

Hi @fitchizumi,

You might wish to see this post by Mentor @cynaburst, who recently attended the International Symposium on HCM where Dr. Joseph Dearani, Chief of Cardiac Surgery at Mayo Clinic, gave a presentation on myectomy:
https://connect.mayoclinic.org/discussion/notes-from-presentation-by-dr-joe-dearani-re-myectomy-at-hcm-summit/