Photobiomodulation for Early/Intermediate Dry AMD

Posted by prayingtolucy @prayingtolucy, Dec 29, 2024

I was doing some research on up to date treatments for intermediate dry AMD. I found photobiomodulation was approved by FDA in November 2024. It's been successful in treating both early and intermediate dry AMD. Best for visual acuity of 20/120 or better. I still have 20/20 vision 🙏. I'm going to contact my retinal specialist tomorrow.
Has anyone heard about this from their specialist or regular opthalmologist? It sounds like a terrific leap forward to curing this horrible disease. Any thoughts or knowledge on this subject is greatly appreciated.

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I haven’t heard of this. But I have an appt. with my specialist this month. I’ll read up on it and ask him about it during my appt.

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Please let me know what you find out.
Are you intermediate and are you experiencing any vision loss? I am intermediate but have no idea when I was in the early stage. Very confusing because I have always seen my opthalmologist annually until COVID then it was impossible to get an appointment but that was only two years. It seems I went straight to intermediate. My vision is still very good... I'm kinda young for this,I'm 56. It's very upsetting.

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@prayingtolucy

Please let me know what you find out.
Are you intermediate and are you experiencing any vision loss? I am intermediate but have no idea when I was in the early stage. Very confusing because I have always seen my opthalmologist annually until COVID then it was impossible to get an appointment but that was only two years. It seems I went straight to intermediate. My vision is still very good... I'm kinda young for this,I'm 56. It's very upsetting.

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I was diagnosed in my 50’s, too. And I completely freaked out. But my specialist told me my vision would most likely not be affected until I was in my 80’s. I’m not sure how he would know that.

As for “intermediate”, I don’t know. My doc hasn’t used that term. He says “mild” and “stable”. I don’t exactly have vision loss, but the spots on the macula often make straight lines look wavy. I can only see that if I concentrate on it, though. Otherwise, my eyes or brain compensate.

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@mosaics

I was diagnosed in my 50’s, too. And I completely freaked out. But my specialist told me my vision would most likely not be affected until I was in my 80’s. I’m not sure how he would know that.

As for “intermediate”, I don’t know. My doc hasn’t used that term. He says “mild” and “stable”. I don’t exactly have vision loss, but the spots on the macula often make straight lines look wavy. I can only see that if I concentrate on it, though. Otherwise, my eyes or brain compensate.

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I have actually contacted a couple of eye clinics in London. They have had it approved for a few years. I couldn’t really get good satisfaction from talking to the clinics. My Retinal Dr had a patient go over but didn’t see any difference. That was why I didn’t pursue it. I’m bc still interested of course if I can get some improvement.

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@mosaics

I was diagnosed in my 50’s, too. And I completely freaked out. But my specialist told me my vision would most likely not be affected until I was in my 80’s. I’m not sure how he would know that.

As for “intermediate”, I don’t know. My doc hasn’t used that term. He says “mild” and “stable”. I don’t exactly have vision loss, but the spots on the macula often make straight lines look wavy. I can only see that if I concentrate on it, though. Otherwise, my eyes or brain compensate.

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How old are you now?
My retina specialists basically said the same thing, that it will mostly likely be decades before it affects me. I hope by then there is a cure.
When I was first diagnosed last year I freaked out. I cried for days and literally felt like I didn't want to be here anymore if I have to live like that. I'm feeling better right now but I'm still worried.
Which state are you in?

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@prayingtolucy

How old are you now?
My retina specialists basically said the same thing, that it will mostly likely be decades before it affects me. I hope by then there is a cure.
When I was first diagnosed last year I freaked out. I cried for days and literally felt like I didn't want to be here anymore if I have to live like that. I'm feeling better right now but I'm still worried.
Which state are you in?

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I’ll be 65 in a few days. And yes, I was very upset when first diagnosed. I thought I might go blind within weeks. 😂 But I felt much better after seeing my doc. I also have a sister-in-law in the medical device industry. I asked her what she knows about this treatment. She said she knows some people who work for the company who make this medical device and she’ll ask them about it. Of course, they’ll probably have glowing things to say about their own device, but I’d like as much info as possible. And my SIL is pretty good about wading through the hype and getting the real scoop. I’ll let you know what she finds out, and will try to remember to post what my doc says. I think my appt. is on the 21st, so will be a while.

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@prayingtolucy

How old are you now?
My retina specialists basically said the same thing, that it will mostly likely be decades before it affects me. I hope by then there is a cure.
When I was first diagnosed last year I freaked out. I cried for days and literally felt like I didn't want to be here anymore if I have to live like that. I'm feeling better right now but I'm still worried.
Which state are you in?

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I’m in TX

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@mosaics

I’ll be 65 in a few days. And yes, I was very upset when first diagnosed. I thought I might go blind within weeks. 😂 But I felt much better after seeing my doc. I also have a sister-in-law in the medical device industry. I asked her what she knows about this treatment. She said she knows some people who work for the company who make this medical device and she’ll ask them about it. Of course, they’ll probably have glowing things to say about their own device, but I’d like as much info as possible. And my SIL is pretty good about wading through the hype and getting the real scoop. I’ll let you know what she finds out, and will try to remember to post what my doc says. I think my appt. is on the 21st, so will be a while.

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The photbiomodulation is a light therapy that was approved in the US last month, November 2024. It's not a device.
Were you mid 50s when diagnosed? My regular opthalmologist was surprised I would develop this at my age and my good health and weight. I'm shocked too. I had never heard of it before.

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@ozziero

I have actually contacted a couple of eye clinics in London. They have had it approved for a few years. I couldn’t really get good satisfaction from talking to the clinics. My Retinal Dr had a patient go over but didn’t see any difference. That was why I didn’t pursue it. I’m bc still interested of course if I can get some improvement.

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I have a friend who lives outside of London. She is 69 and has had AMD for about 10 years. I talked to her about photbiomodulation and she has never heard of but hopes it will be available in the UK one day.
Are you sure we are talking about the same treatment?

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@prayingtolucy

I have a friend who lives outside of London. She is 69 and has had AMD for about 10 years. I talked to her about photbiomodulation and she has never heard of but hopes it will be available in the UK one day.
Are you sure we are talking about the same treatment?

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Well, I was doing more research and learned that the UK and EU have been approved for the light treatment for a few years. That's amazing to me. I wonder why my friend has not heard of it?
What you've heard is it doesn't work well in the progression of this despicable disease? I'm going to talk to my retina specialist soon. I'll share any information I find out.

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