Evenity Side Effects

Posted by cincy @cincy, Dec 27, 2023

Has anyone had severe back pain and burning sensation on Evenity after just starting ?And how long does it last or is it a sign to try another medication?It starts about 7 days after the injection and pain is severe you can’t do a thing.Thanks.

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@lafee

Hello, I'm new to this group and wishing everyone a happy new year!
I will start out by saying that although Evenity shots are well tolerated by most people, be cautious if you have multiple health issues or chronic illnesses like I do. Getting Evenity shots was the worst health decision I ever made. I've had a history of severe osteoporosis after getting chemo for breast cancer and my doctors were concerned. Evenity was the best option, they said, because I also have kidney disease and it won't hurt the kidneys. I also have Parkinson's disease and some other chronic illnesses. I've had two bone breaks and last year I had a hip replacement after a fall. I am highly sensitive to any medications. I received Evenity shots for just two months last Spring and began having joint pain right away and had to discontinue it. I had been working with a personal trainer and physical therapist after my hip replacement, and I would say it was completely healed by the time I got those shots. But after two months of those shots, my joints hurt and although I stopped getting them after last May, the inflammation and pain in my hip is still bothering me as if I never had physical therapy. I am sharing this because doctors don't seem to know that if you are a sensitive person, and have a lot of health issues, that adding these shots could be problematic for some people. I'm really angry about it, but I only had myself to blame. I certainly wanted to do all I could to take care of the problem. Now I just rely on exercise and am using a vibration plate, taking calcium and Vit D with K. So I'm just sharing this in case that is your experience....that you have other chronic illnesses and have had to stop getting the treatment due to bad reactions,

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@lafee I did only one of two shots of Evenity for the 2nd and 3rd months and still had burning/tingling. I have autoiummune disorders and neuro issues anyway. Most people I know do fine on Evenity but some of us are sensitive to it.

Just wanted to let you know that I did fine on Tymlos. I could not at first tolerate full dose so I started at a lower dose (the injection pen has "clicks" for doses) and titrated up. I have chronic kidney disease and my doctors had no concerns with Tymlos. Yes, if calcium is high, there is some risk of kidney stones, but the kidneys tolerate Tymlos well. I am wondering why Tymlos, or Forteo, were not offered to you after you stopped Evenity.

I had dramatic gains on Tymlos. After several fracures, I feel it literally saved my life.

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lafee, thanks for this insightful post.
While Evenity has been a good remedy for some, even some without complicating health issues respond adversely. Doctors don't seem to know. And we blame ourselves unfairly.
Your presence is welcome.

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@lafee for what it's worth, Keith McCormick (author of "Great Bones") told me that 40% of his patients have joint pain with Evenity.

Evenity is so new that we may still be discovering side effects post-marketing. Of course also being revealed is the potency of Evenity in treating osteoporosis so it is unfortunate that some of us cannot tolerate it.

I found that doing one shot rather then two didn't really help with this medication.

I hope you are able to do Tymlos!

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@windyshores

@lafee for what it's worth, Keith McCormick (author of "Great Bones") told me that 40% of his patients have joint pain with Evenity.

Evenity is so new that we may still be discovering side effects post-marketing. Of course also being revealed is the potency of Evenity in treating osteoporosis so it is unfortunate that some of us cannot tolerate it.

I found that doing one shot rather then two didn't really help with this medication.

I hope you are able to do Tymlos!

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Thanks for the info about Tymlos. I'll check into it, but I'd be afraid of another reaction. With having Parkinson's disease, my nerves, muscles and tendons are sensitive, and my hip has a lot of inflammation from it that got triggered from the shots so I am leary of another medicine.

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@lafee

Thanks for the info about Tymlos. I'll check into it, but I'd be afraid of another reaction. With having Parkinson's disease, my nerves, muscles and tendons are sensitive, and my hip has a lot of inflammation from it that got triggered from the shots so I am leary of another medicine.

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@lafee Tymlos leaves the body within a few hours, and the dosage on the pen can be adjusted to very low, and then as you move up gradually the body may adjust. I never did a full dose- got up to 7/8- and had dramatic gains. Any side effects for me were gone in 2 hours after the injection, but everyone is different.

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@cincy

Thank you Chris.Within 7 days after injection this started.The endoc must be on vc this week but it is severe pain no matter what you do.It continues all day all night without relief.I’m wondering if my body just cannot adjust to this med??

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I just wish to tell you that I was put on the drug Alendronate, and experienced all the side effects, especially pain! My back pain was so bad, I was afraid to get up and walk in public, as my legs did not feel attached to my hips, and were like jelly. I also had severe pain in my hips and shoulders. I quit taking the drug after 3 mo., but decided to try it again,as my friend said she had no problem with the drug. The pain became so bad, and the nausea was so bad, I saw the doc. and told her I just could no longer take it. She wanted me to start with prolia, but I told her I just cannot until these symptoms go away. They are now a wee bit better, but not gone. I am scared of trying another drug. I can truly sympathize with you and your pain.

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@rosemaryhow

I just wish to tell you that I was put on the drug Alendronate, and experienced all the side effects, especially pain! My back pain was so bad, I was afraid to get up and walk in public, as my legs did not feel attached to my hips, and were like jelly. I also had severe pain in my hips and shoulders. I quit taking the drug after 3 mo., but decided to try it again,as my friend said she had no problem with the drug. The pain became so bad, and the nausea was so bad, I saw the doc. and told her I just could no longer take it. She wanted me to start with prolia, but I told her I just cannot until these symptoms go away. They are now a wee bit better, but not gone. I am scared of trying another drug. I can truly sympathize with you and your pain.

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Why not a bone builder like Tymlos, forteo or evenity?

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One of the nice things about Tymlos and Forteo is that they leave your system quickly. With adverse symptoms you can quit them any day. Evenity isn't so nice with adversity.

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@gently

One of the nice things about Tymlos and Forteo is that they leave your system quickly. With adverse symptoms you can quit them any day. Evenity isn't so nice with adversity.

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I had one shot of Prolea on April 3,2024and still have the following problems;

Severe case of Eczema on both legs. This medication has affected my Thyroid and parathyroid significantly.
Diarrhea plus and overall lack of energy. Does it ever stop. Today is January 5. 2025

Help! Annie

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