What's your post myemectomy gradients.

Pliz detail me the details of cost

1. Echocardiography

2. Other relevant tests

3. Myomectomy procedure

Total for surgery, and all the tests. Had 2 echoes. A bit over 70 thousand. Which, both my husband and I thought was reasonable.

I have just been informed I have HCM. The genetic testing was positive. Waiting to here from Doctors. I switch to the Mayo Clinic on Oct 23 2017 after going through a stroke 5 years ago. Then 2 years later I had a SCA was shocked 9 time by EMT's. Had a ICD implanted at this time, and since then I have been Shocked 15 times in the last 2 years by my ICD.

Hi Ronald. I have HCM, diagnosed 30 years ago, symptoms started as a child but no one knew what was wrong. I’m coming to Mayo Rochester April 2-5. I’d enjoy a chance to meet you and hear about your experience. I’m also a writer and want to get more involved on social media. I have open time on Wednesday April 4 for lunch or available all afternoon. Could we meet? Thanks Gwen

@ronaldpetrovich please see my note in this thread about coming to Mayo.

Angelo
Have been being treated for HCM for about 4 years My Doctors are at the University of Pa Iam at this point maxed out on meds Docs are considering the alcohol ablation I will be following the discussions

Even tho I've joined and asked a question or two, I've not introduced myself. I'm Sherry, live in Idaho and scheduled for a Mayo trip and surgery the end of June. I have HOCM and was only diagnosed in Feb. However I think it's because I happened to have been seen by a dr who knew what he was doing and seeing. For several years I've had symptoms ...shortness of breath, palpitations, odd EKG's and known heart murmors. Even told I have a thickening heart muscle. but nothing was mentioned about HOCM. As the time gets closer my concerns get bigger and I wonder if I'm alone in that thinking. Other than walking makes me wore out it doesn't stop me; I just need to rest a minute or so... so I wonder do I REALLY need this. I also think, what if I get there, go through the expense (flight, hotel, car rental) and the doctors there say ..."naw you don't really need this" My doctor here says after reviewing what he sends them they aren't going to waste their time or mine in having me come if they don't agree with him. I guess I could say if no surgery is needed I got a forced vacation. Positive thinking right? haha. I do tend to get myself worked up in worry so I'm thankful I can voice my concerns on here.

I'm confused. I just signed onto this today, but there is another group? "new (HCM) group on connect?"

Hi. Three years ago I had Resection of sub aortic membrane,Left ventricular septal myectomy
Aortic valve replacement w mechanical prosthesis performed at Mayo. I have a yearly checkup at the Mayo valve clinic. Now that I am aware I have HCM should I be seen at the HCM clinic by one of their drs instead? I have questions I don’t feel the valve clinic can answer.

Hi, I'm Tonia. I was originally told that I had left ventricle hypertrophy caused by HBP, but was recently told that I have HCM. I'm sick over it.