Living with Neuroendocrine NETS, any advice?

Thanks, I’ll post again when I have more time.

Thanks so much, I’ll post again when I have more time, Merry Christmas.

Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I also changed my diet. I think changing my diet made the biggest difference since my liver and digestive system is compromised.

What changes have you made to your diet?

Has any one else also been told they have fatty liver and would loosing weight in general hoping from the liver also make any difference with NET? Seems the belly is the last to notice getting smaller.

Yes, I’ve lost 35 pounds in the last three years but the belly is the last to shrink. Arms and legs are a lot smaller.

Hello @amygirl,

The question about fatty liver and NETs is something that your doctor could best answer. On Mayo Clinic's website there is some information about Nonalcoholic Fatty Liver Disease, Here is the link to that information,
https://www.mayoclinic.org/diseases-conditions/nonalcoholic-fatty-liver-disease/symptoms-causes/syc-20354567
On Mayo Connect, we have several members who have discussed fatty liver. Here is a link to those discussions,
--Has anyone reversed fatty liver?
https://www.mayoclinic.org/diseases-conditions/nonalcoholic-fatty-liver-disease/symptoms-causes/syc-20354567
Has your doctor given you any information on healthy eating habits for fatty liver disease?

My question is really to get others opinions on this site that are experiencing the same. Thank you for the link.

I understand, @amygirl, however, Connect members are not medical professionals, but patients like yourself. The question you are asking about the correlation between NETs in the liver and fatty liver disease is something that your doctor could answer better.

In very general terms, I do not recall seeing any posts from NET members with liver NETs who also have fatty liver disease, however, feel free to search the Connect website to see what you can find. You can search by going to the top of any page on Connect where you see the "Search" bar. There you can type in the information you are looking for. If you find anyone discussing this correlation, you can post to them and make comments or ask questions.

Does that help?

Cut out red meat, alcohol and foods high in amines mostly. I also cut out soda and fast food. I try to eat mostly whole foods. I find daily consumption of blueberries and yogurt has helped with my digestion too.