1. < Neuroendocrine Tumors (NETs)

Living with Neuroendocrine NETS, any advice?

Posted by gg66 @gg66, Dec 13, 2024

Hi I am new here and just want to have a good place to chat with people that share my thoughts and concerns about my experience

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

cordelia73 | @cordelia73 | 2 days ago
In reply to @hopeful33250 "Hello @cordelia73 and welcome to Mayo Connect. No, I have not had any metastasis, just the..." + (show)
@hopeful33250

Hello @cordelia73 and welcome to Mayo Connect.

No, I have not had any metastasis, just the carcinoids in the duodenum. Surgeries have been my only treatment.

How was your husband's NET diagnosed? Was he having symptoms that led to the diagnosis?

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Thanks for answering. He had accuse pain and we thought it was appendicitis, in the ER, after a CT they saw a mass and then it all started. The biopsy confirmed well diferientiated , grade 1 neuroendocrine neoplasm in four tumors in different parts. Waiting for the Pet Scan to know more.

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