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How to build him up when he wants to tear me down.

Caregivers | Last Active: 4 days ago | Replies (15)

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@crumblingaway

The downside is that his mother estimates calories and protein and isn't really scientific about it. Hasn't really been showing a lot of evidence she's been listening to food requirements. In addition, we live 9 mi away from Mayo Clinic where he's getting treatment daily vs 30 miles away at their house.

As for today... the pain went from about a 3 or 5 (depending on the area) to a 7 or 8 yesterday. He started taking the Oxycodone for the pain. I made him a smoothie and even that burned going past the mucositis and tonsil. He has HPV+ tonsil cancer - rather large, surgery was not possible without an enormous loss of the soft palette. He just turned 50 (I'm 48) so prognosis SHOULD be good but it's hell getting through it. He has no taste right now, pain eating, needs to eat 3000 calories daily and is terrified of a feeding tube in his stomach. Neither of us are spiritual. Can't afford anyone to help either. Both of us aren't working as we were trying to take time off to establish a business (an app - would be a retirement plan of sorts down the road to make passive income), hence the reason I'm having to seek employment ASAP once he's on the road to recovery. We're pretty locked down in terms of budget.

I imagine my husband could relate to your experience, @denise96. He cared for his grandfather by himself here prior to my moving in and there was a lot of things like that - overflowing coffee makers, fiddling with the thermostat too much, having panic attacks when not able to find his labeled lunch in the fridge. It sounded like hell.

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Replies to "The downside is that his mother estimates calories and protein and isn't really scientific about it...."

Well, it is a good thing that you are close to the mayo clinic. Where we live, it takes 10 minutes for an ambulance to get here. The nearby ones have all closed to lack of funds. We live in a rural area and the nearest small town is 15 minutes away. I feel like this is just a waiting game. I just bought him a carton of cigs on on Friday which are 10 packs and he has been asking me if I am going to the store today because he is running out of cigarettes. He has 5 packs left and is getting anxious about running out. I told him that I just bought him a carton (he pays for them) and he said "yeah?' I said well you have 5 packs left and he said well that should keep me til tomorrow. YOu can get me more then so I won't run out later in the week. He is literally smoking himself to death. The doctors told him that by contiuing to smoke, the cancer will just keep getting worse. Of course, he lies to them and says he only smokes a pack a day. I just remain quiet because what good is it going to do? You guys are so young. Can he apply for social security disability? Are you guys eligible for visiting nurses?