1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

jcherry | @jcherry | Jun 24, 2018

Hello Jen.. I’m new here and wanted to say hi. I’ve been reading that some people haven’t heard of pain management dismissing you if you test positive for marijuana,and I’ve been in pain management for 18 years and every pain management Dr I’ve been to has that rule. They also have signs posted in the waiting area that if you test positive, they will no longer provide care. Due to all of the federal stuff going on right now, my Dr told me that they can no longer do the urine test but the lab will randomly call you in for your drug test. My Dr was very upset. He did have patients that he approved to use marijuana but they can no longer use it because he has no control over when the testing is done. Our healthcare really sucks for us. I’m among the many that actually need treatment and because of people that faked illness to get the narcotics, we suffer... sorry to rant ...

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Mamacita, Alumna Mentor | @mamacita | Jul 4, 2018

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

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16 replies
irene5 Irene Estes | @irene5 | Jul 4, 2018

God bless you real good! So sorry it took so long to get the right medication. But the good news is now you are doing better! Kudos to you for your perseverance!

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keb0504 | @keb0504 | Jul 4, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

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Lyrica helped my fibro soooo much and quickly! Unfortunately, after about 2 months, it swelled my lower legs and ankles/feet to the point where that I could no longer take Lyrica. Dr changed my meds to Cymbalta. It helped but again, the same swelling came back. Not sure what to do now. Dr has referred me to pain clinic. Hoping they will help me.

REPLY
Mamacita, Alumna Mentor | @mamacita | Jul 4, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

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Everyone is different, that's for sure. How smart you were to work with your physician to make the best choices for your body! We have some really good pain clinics around here. I have heard that they can be very beneficial in helping to regain your health. I will be hoping with you that just the right treatment plan is found for you. We are here for you. @mamacitalucita

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lioness | @lioness | Jul 5, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

@mamacitalucita sounds like you found peace and helping others is what's it's all about.Congrats

REPLY
keb0504 | @keb0504 | Jul 5, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Yes and thank you! I'm being treated at Mayo in Phoenix. I will have my 1st consult at the pain clinic there soon. I'm hopeful they can help me.

REPLY
keb0504 | @keb0504 | Jul 5, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Right now I'm not on any meds for my fibro until I have my 1st consult at the pain clinic. I'm in a lot of pain but trying to do the best I can to get around. It's hard to exercise when the temp here in AZ is 105-115°. Going to work everyday is difficult but does get me out of the house. The sleepiness nights and daytime tiredness are almost more bothersome than the pain.

REPLY
Mamacita, Alumna Mentor | @mamacita | Jul 5, 2018
In reply to @mamacita "Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe..." + (show)
@mamacita

Hi, everyone. This is @mamacitalucita. I do have Fibromyalgia, diagnosed since 1990. I have had severe flares for several years in a row, now. Where I live the doctors are extremely cautious of prescribing too much or the wrong kind of medicine. Extreme, chronic pain can frequently lead to depression. Until this past year I spent most of my days hugging the sofa. My life was on hold, as I put on a mask for my family. The stress of concealing the depth of my pain took its' toll. I tried to get appropriate medication from my specialist. I honestly think he believed I was exaggerating. I went to work, took care of my family, but I was hardly living. I worked because I had no choice. After I retired, it became clear to me that my doctor was giving me the very least amount of medication he could. So I started bringing a notebook with me to my appointments. I let him know exactly what Fibromyalgia was doing to my life. The activities of daily living, the responsibilities at work, the relationships of family and friends. My pain was damaging my life. Fortunately he finally comprehended my need for a change. Lyrica changed my life. I also supplement with Magnesium and Flaxseed oil capsules. I eat a very low carb diet, with an emphasis on lots of vegetables and protein. A few nuts and seeds, some strawberries and blueberries. Lots of filtered water, prayer, and mindfulness. Eliminating negativity in my life has helped tremendously. I try to give back to others what I did not have for so many years. Peace and love. @mamacitalucita

Jump to this post

Yes, @lioness, I have indeed. I am happier than I have ever been. Helping others to find hope is what it's all about. Love and light, mamacitalucita

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