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My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Blood Cancers & Disorders | Last Active: Dec 22, 2024 | Replies (20)Comment receiving replies
The meds are usually for platelets so if it’s just the hemoglobin and hematocrit the only way to control that is with phlebotomies is what my hematologist said. I asked him if I could stop the hydroxyurea and he said it will lower my platelets, which were over 800, so I had to take it. The phlebotomies alone can control the other two. Honestly, better if she can skip the meds.
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I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side effects were severe enough I was switched to Jakifi. My understanding was Hydroxyurea suppresses all blood cell lines, but Jakifi is more targeted to red blood cells. My counts were finally down enough I can stop the phlebotomizes.
This week I learned red blood cell procurers will become platelets of you're low on iron.