Covid, long Covid and now Covid again: What can I do?

Posted by fancy50 @fancy50, Dec 21, 2024

Had covid four years ago had trouble ever since hair coming out brain fog and now have it again. Any one experience this and what can you do. Nobody seems to care.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I had covid in March 2023 followed by ~8 months of long covid. For me, the LC mostly hit my cardiovascular system and PEM (post exertional malaise). I exercised in small bits followed by naps. It is tough with long illnesses to find people that care. The isolation makes the LC feel worse. You can try searching "long covid support groups near me" because it helps to talk with others who know what you are going through.
Thirty one years ago (I'm 70) I had a moderate traumatic brain injury (extreme brain fog) so know how emotionally and physically draining it is. I exercised my brain in bits with rest between, such as puzzles, games, hobbies, any escape that feels good. Try to find something to look forward to each day, no matter how small, to help break through the heavy weight of covid. You are in a difficult place, and the healing is hard.

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To kayabbott —

Thank you for your description of the successful use of “Pacing” while exercising your body (currently) and your brain (previously) to rebuild capacity.

I have Post-Exertional Malaise (PEM) and apply Pacing to all my activities throughout the day.

People can learn more about Pacing strategies online by searching with the term “Pacing.”

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There is a good group on Facebook with long Covid experiences which give out information.

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Another long haul covid symptom from the August covid infection is my low iron. I have never been anemic before, and I am nearly 75 so way past menopause. I tried taking a ferrous homeopathic for a month. My iron was at 17 and should have been at 50. I bought 10 packages of grass-fed beef jerky dried only with salt and pepper. As well as taking the homeopathic, I ate half a bag each day of the beef jerky for 20 days and then re-tested my iron. It went only from 17 to 18. Obviously I am challenged at absorbing the iron. So now I take 3,000 mg of iron with orange juice each night on an empty stomach and then I will get my blood re-tested. Only then will I be eligible to get an iron shot. No wonder I feel weak and dizzy with activity and have low stamina! Anyone else with this symptom?

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Yes, my hair is getting thinner and thinner. Brain fog all the time and fatigue and so many symptoms I can't count. I have extreme high blood pressure also. Countless meds that don't work and many doctors. Arrhythmia has just been added to that also. I've had long Covid for 2 years.

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I am into my 2nd year with fatigue, brain off and fear. Fear that its never going to go away

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If you aren't already, mask up in public places.

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I will try my best to describe what my day is like and the steps I take to address the effects of Systemic Lupus Eruptions.

Around 11:00 am I feel its heaviness and FATIGUE coming on. When I first read about SLE the word FATIGUE would be in bold print. It did not take too long before I understood why.

So off to bed. After 10+ years I moved to reading an Apple Watch. I set it for 30 minutes. I sleep on my left side (check out all the reasons) with our Mayo friends). I use a bolster I bought from Soaring Heart in Edmonds Washington. I bought my first Futon from them circa 1984.
After the nap I am typically good to go till bedtime. However there are days when I take a second nap around 5:00 pm.
Hope this helps. Any questions please let me know🙏🏻❤️

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There are different weights for the bolster filling.

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