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My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Blood Cancers & Disorders | Last Active: Dec 22, 2024 | Replies (20)
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@tleona3024

A lot of folks talk about platelets, but my mom’s platelets are normal. Only hemoglobin and hemacrit were high

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nypara66 | @nypara66 | Dec 22, 2024

The meds are usually for platelets so if it’s just the hemoglobin and hematocrit the only way to control that is with phlebotomies is what my hematologist said. I asked him if I could stop the hydroxyurea and he said it will lower my platelets, which were over 800, so I had to take it. The phlebotomies alone can control the other two. Honestly, better if she can skip the meds.

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