1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Jen, Alumna Mentor | @sandytoes14 | May 25, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

@parus I am pleasantly surprised how much relief I got from the trigger point injection. I just wish I knew why I have a hard time speaking up about pain. Ask my friends and family-- While I'm not a "big mouth" I voice my concerns etc. Do you or @grandmar have any thoughts on why we as women tend to do this?

REPLY
grandmaR | @grandmar | May 25, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

I have my personal thoughts on this topic.
I believe that we as women are trained not to complain about ourselves.
As mothers and wives, we will go without so that our children and husbands will have.
We will not complain that we are going without because it is our 'job' to make sure they get first.
At our jobs, if we voice our concerns or complain, we are trouble makers, wimps and 'bitches.'
So when we go to the doctor, we will often downplay what is happening. If, however, we take our children to the doctor, we will go with notes and lists of things to discuss.
Nature or nurture?
I don't know.
ronnie

REPLY
Texas Freedom | @oregongirl | May 25, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

I am getting some sort of shots. I have a feeling they are giving me what I call amnesia drug. My son has to be there with me. I know he talk about trigger, but not this upcoming visit.

REPLY
Texas Freedom | @oregongirl | May 25, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

As for me, I will have a good when I see doctor. Might as well go home. Next day I am miserable again.

REPLY
Mamacita, Alumna Mentor | @mamacita | May 25, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

Hi everyone. We've been on vacation and then we all got sick and had to go to the doctor after we got home. I have missed you all and hope to get caught up with everyone over the weekend. I have learned that our society wants us to down play any negativity, including the facts about whatever is wrong with us. When we go to the doctor, I have found that it is best to be straight forward and just tell it like it is. I downplayed everything for years, and that's how I got to be so sick. Doctor's can't make a correct diagnosis if they don't really know what is going on with us. it is not complaining to tell the truth. We need to love ourselves and take good care of ourselves.

REPLY
lioness | @lioness | May 26, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

@oregongirl That was what the Dr. gave me I had to have my friend with me it was like I was in a fog, very lightheaded.Is this how you felt with it ?

REPLY
Mamacita, Alumna Mentor | @mamacita | May 26, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

I have tried some shots, when the pain was absolutely unbearable. They worked beautifully, for about two days. Then everything just dropped off the cliff, like Wiley Coyote. So disappointing. My friend has had them multiple times and they worked great for him/ However, he has had to have surgeries and procedures. Some worked for awhile, others not at all. Our responses to all these things seem to run the gamut of what is possible. Perhaps one day, science will have advanced to the point that we will be able to predict by using our DNA what will work, and what won't. Thus sparing us years of suffering. Oh, wait.....they have that now! To a certain extent anyway. it is not in common practice yet. But one day, hopefully, it will be. Until then, dear ones, we must keep a handy list in our heads of what helps with stress relief ( as stress does indeed, make it worse), what makes us happy, and what motivates us. We need to build in space in each day for just relaxing, just being still. Nor worries, just being. And being grateful. Some call that meditation or prayer. OK, my time is nearing to a close here....the household is waking up. Talk to you later, I hope. Blessings, MamacitaLucita.

REPLY
Parus | @parus | May 26, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

@sandytoes For me I hear so many complaining women (yes, bitching bitches) Thanks @grandmar for speaking straight as this is how I see it when I hear thus. I am terrified of speaking the "P" word anywhere as I do not want to come across as weak and pitiful. " I am woman, I am strong!" NOT, but unwilling to admit thus. See it as both nature and nurturing. I also know men that are this way too.
Clarification-I am female and have respect for both genders...clarify, always clarify with clarification.

REPLY
Parus | @parus | May 26, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

@oregongirl I have the same problem...it is called doctor face.

REPLY
grandmaR | @grandmar | May 26, 2018
In reply to @sandytoes14 "@grandmar @parus @lioness @marcyk Hello friends and fellow fibro fighters, I wanted to share with you..." + (show)
@sandytoes14

@grandmar @parus @lioness @marcyk
Hello friends and fellow fibro fighters,
I wanted to share with you the importance of speaking up at your doctors visit.If you are like me, you go see your pain management doctor month after month and with few exceptions he prescribes the same medicine or treatment. When I go to an appointment, I fix my hair put on a bit of lipstick and try to look nice. This month, I felt awful and couldn't do my hair, I had dark undereye circles, etc. My doctor walked in the room and instantly took a look at me and knew something was wrong. Now mind you, there have been times when I felt like dirt but still looked "presentable". Anyhow during my exam I finally told the doc how much I had areas on my back that were hurting me terribly for months. Well, I said the magic words I guess and he gave me Trigger Point Injections right then and there. I couldn't believe I had relief before I even checked out from my visit!
So my advice is this: even if you are uncomfortable, Speak Up! We all must remember to be our own advocate and that speaking up does not mean you are a complainer or a whiner. What's the old saying? The squeaky wheel gets the grease.

Jen

Jump to this post

You are so right that men complain, too. Sometimes they are bigger babies. Don't get me wrong, I love men. I am not anti-man. It's just sad that it is the women who get pointed at when making too many complaints, etc.
"I am woman, hear me roar!"

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