Fibromyalgia pain: Let's connect

Sounds great. Bi cannot get in tub without someone to help me out. So shower and heating.. we don't need heat in our pool. This is Texas. But for 2 yrs now weather has really been great. One month August. Hot hot. Expensive air. And with ran I hate Central air blowing me. God bless all of you and let's jointly pray for healings.

Prayers for healing, in the precious name of the Most High.  While pain can definitely be a great teacher, there ate other ways we can learn. Instead of asking "why me" I have learned over the years to say "Why not me?". I am the clay and He is the Potter.  Cracked pots are still beautiful, because they let the Light shine through. Peace and love, my friends.

Cool!  I used my trusty heating pad on my abdomen over half the day yesterday. It helped when nothing else would.  So it works for IBS too. Yay!

Fibrowarriors are some of the strongest people I have ever known.  We do what we have to do for out families' sake.  For our own sake.  Sometimes we push through pain because if we don't get up off that sick bed we will cease to feel like a human being.  Then we pay the price for having done just one thing a normal person does. I am trying to pace myself.  I only have so many "Spoons."

You a re not weak  You are Fibrowarrior Strong.  Nerve pain is one of the worst.  I am on Lyrica finally.  It is amazing the difference in my life.  I also take magnesium and ginko biloba.  Cymbalta and Flexeril at bedtime. Mobic for joint pain, as needed. Here's hoping that you find a regimen that works.  You are worth it!

@parus

You are being very hard on yourself. Thinking of, and calling yourself "pathetic" and "weak" only hurts your tired mind more. Pain is exhausting and depressing, as you know. What we tell ourselves reinforces the old messages we got originally from parents, spouses, siblings or other "authority" figures in our lives. One of the first things I had to learn was to stop calling myself names. I used to think and say out loud to myself, "Stupid", "Dummy", "Lazy", "Clumsy", etc. because that's what I heard about me from adults running the orphanage where I spent 7 years of my childhood. It has taken me years to stop putting myself down and to see that I am a talented, smart, action - oriented woman. I have a Master's degree and have had a very successful career, in spite of my childhood. The only way I could have done those things was that I learned to stop putting myself down.

My hope for you Parus is that you can begin to see your value as a loving and loveable person. You have an illness that causes great pain, but that doesn't mean you lack value. You are a talented artist from what I've seen, and you are expressive in writing as well. Even without those talents, you are a person who deserves human dignity and love. I hope you love yourself and begin giving yourself positive messages. I know it's hard when you're in pain and suffering from depression. This is when it's especially important I think. Be kind to yourself. I used to put my arms around myself and hug me like I had longed to be hugged as a child. I would close my eyes and imagine all the little "Gails" at different ages and imagine myself pulling all of them close and hugging them all, telling them that I loved them with all my heart. I cried every time I did that. I would also imagine putting a little "Gail/me" in my lap and talking gently and lovingly telling her all the wonderful things I loved about her. By repeating this process whenever I needed to, I slowly began to trust myself as a loving and loveable person. I hope this is something you will try, even though you may feel awkward at first. It's new behavior, which always feels awkward and unnatural at first. The longer you do it, the more natural you will feel. I'm hoping the best for you.

Gail
Volunteer Mentor

@grandmar

I had a laminectomy in December, 2016, and it was one of the best things I have done. My L5-S1 pain is gone! My brothers have both had fusions of various lumbar disks, and they still have pain, but they are able to walk and are not in wheelchairs. We have genetic predispositions to back issues. I have DDD, spondylitis, C7 compression fracture, osteoarthritis, F4 disk slipping on top of my L5-S1 disk and pressing on my spinal cord, and a bunch of other things. The L4 disk repair will be major surgery, so my surgeon told me to try everything else I could to reduce the pain before surgery.

I read on Mayo Connect about ART, Active Release Technique, relieving lumbar and back pain for others with my same issues so I decided to try it. I have written in other posts about finding a great chiropractor who was certified to use this technique. In 3 weeks, with 2 sessions a week, my pain was nearly completely gone! I'd had chronic pain on my right side for about 8 years, but it had gotten worse in the past 2 years. I could hardly believe it was gone after 3 weeks! This was a year ago, and I am still pain free. No more pain medication, and I can walk, climb stairs, etc. without pain. I see the chiropractor once a month for a tweak and to address other issues (radiculopathy from my C7). It's the best thing I have done for my pain. ART works on the theory that muscles and nerves get bound together in a mass as a result of trauma at various times in our lives. It uses deep deep muscle massage and movement of the limb (my right leg) at the same time. Wow, it worked for me. It may be something you want to look into. BTW, I had shots in my right hip years ago for what the doctor had said was bursitis. They never helped my pain, probably because of misdiagnosis. Best of luck to you.

Gail
Volunteer Mentor

Amen. We can't give in its not our time yet to check out yet ,our day will come to go home then will celebrate this disease ,we,ve won then

Wonderful I have gone
all my life I have a sacrelization birth defect and he is the only one that can help ,since then I have found that for fibro he works wonders Once a month I also go

Gail,
So happy for you that you have been able to find help. It sounds wonderful!
Continued success!
Ronnie