Complex regional pain syndrome (CRPS) and feeling blank

I have RSD and got it exactly the same way you did falling down the stairs! Crazy. Left ankle wasn’t diagnosed until a year later by then it was too far gone. It has spread to my entire left leg up to my hip. God Bless.

I have CRPS that began in my left foot and has since spread to both feet and legs. I got a Boston Scientific spinal cord implant, and I couldn't be happier with the results. The procedure was done at UNC in North Carolina and has made a significant difference in my life. As a matter of fact, I just got it adjusted right before Thanksgiving.

I've learned that sugar is detrimental to managing this condition, so I've completely eliminated it from my diet. Staying active is crucial; walking is non-negotiable for me! One important thing I've discovered is that I need a neurologist who specializes in treating the symptoms of CRPS. I am still searching for one. Prioritize water aerobics and other forms of physical therapy to keep moving effectively.

Additionally, I've found that red meat contributes to inflammation, so I focus on white meat and fish instead. Gabapentin was ineffective in my case, so I recommend seeking out more effective options.

If you're looking for quality care, I advise you to connect with a teaching college specializing in pain management. Avoid any pain management facility that treats you like just another number; you need a provider who truly understands this complex disease.

I know it can feel like a daunting journey, but I've made significant progress since my diagnosis nearly five years ago. I reached out to the Mayo Clinic in Jacksonville, and their guidance has been invaluable. Remember, don’t stop moving—keep pushing forward!

I’m new to this forum. I am interested to know why is sugar so bad if you have CRPS? I would love to hear your thoughts on this topic.
Thanks so much, Stephanie

@surfgirl
Propaganda
Jake

Inflammation: Sugar can cause inflammation, so I encourage you to research it. Consider trying to eliminate sugar from your diet for a month; you might be surprised by the results. You may even experience withdrawal symptoms during this process. I started by having one piece of candy each day for a few days, then switched to every other day, and eventually stopped altogether. After the withdrawal, go a month without it.

Hello my name is Erin . I was diagnosed with CRPS in end of Oct. 2024. I was Electrically shocked from an industrial vacuum at work and the burning is so BAD . It is now traveling through my body and I am really struggling . I have insomnia now and I was already in full blown Perimenopause to top it off . Please please I need guidance .

Spinal Column Implant DANGER
Globally from 2008 to 2018, in total, researchers found Spinal Column Implant evidence of more than 1.7 million medical-device injuries and nearly 83,000 deaths that have been reported to the Food and Drug Administration (FDA) during those 10 years. I'm glad for your success but the trials and tribulations of turning your life over to these companies is very dangerous and expensive.

I understand exactly what you are saying. However, when you are in excruciating pain and have not had any real relief, the option of an implanted device that promises real relief is often too tempting.

Sugar, white flour, look up anti-inflammatory diet.

When you have CRPS, ypu have increased cytokines, bradykines in your blood. They are pro-flammatory T cells and there are certain foods known to increase the level of them in your blood.

They are actually the same things that got elated when you had covid. It's why covid was so very painful for many people. Crps is an autoimmune disorder. Learning how adrenaline, cortisone, thyroid hormone, etc are all involved is a complex study I'll leave to the scientists bit we all know everything in our bodies works (or doesn't) together and minute changes in one, affects all. You can find much about it online.

I believe in science. I have been dieting and eating no sugar (except when I choose to have some dark chocolate. And no pasta, very little bread etc.

I thought going off sugar and flour would be a nightmare. It has not been as I'm committed. After a while tangerines, grapes, etc all taste much sweeter and sugar cravings can be fulfilled with sweet fruit.

Its why a good antiinflammatory is many times taken with some pain relief. Its not propaganda. Its proven fact.

I also want to remind people that because of medication doesn't work for you, doesn't mean you should start telling other people not to take it ok? In fact some people rule out a medication after trying it once when there are many manufacturers and they're not all created equal.

Like the medication tramadol. I have taken it from a few different manufacturers some are like water. Zero help. Some help.

I'm going to suggest if medication doesn't work for you, look it up online and find out what people are saying about what manufacturers work in which don't, then get that manufacturer and see if that is better.

With Lamictal, Unichem is the most consistent manufacturer. Lamictal is also used for seizures. Different manufacturers of Lamictal can lead to more seizure activity or less. Not subjective. Seizure activity os a very objective find.

Find a pharmacy that doesn't give you a different manufacturer every month. That just means that they give you that month whatever they were able to buy cheapest from their middle man. I'm on high blood pressure medication from long covid and when I stayed on the same drug but went to a different Pharmacy with a different manufacturer my blood pressure went through the roof. Same dose, same drug. 220/110. My blood pressure had been stable on this one particular brand/manufacturer. There's a really good book out about the dangers of generic medication but brand name is all fairly expensive. If you have the financial ability the most important thing I can say to you is take all brand name medication if you can.

There's a lot to be read about generic medication but there's also a lot to be read about sugar, flour, and etc.
Choose science. Look up cytokines/ bradykines. Cytokine storms are what killed many (million?) people during covid.

Comments that just say "propaganda" are less than helpful.
Thanks for reading.

Sugar is known to aggravate inflammation. Considering crps is an inflammatory disease hence the importance of a avoiding it as much as possible. Hard to do during the holidays but you must or will pay the price,