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Interstitial Lung Disease and Autoimmune Diseases

Lung Health | Last Active: Oct 1 12:50pm | Replies (35)
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I have UIP, a type of interstitial lung disease and pulmonologist put me on OFEV to help slow the progression of the disease. My hair has started falling out and I think it is this medication. When I spoke to the pharmacist, they said it was a very rare reaction and suggested I get my thyroid checked. Is anyone else taking this medication and if so, any reactions?

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Replies to "I have UIP, a type of interstitial lung disease and pulmonologist put me on OFEV to..."
bestrongnow | @bestrongnow | Aug 6 12:21pm

I was just diagnosed with interstitial lung disease; no particular kind yet. My lung capacity is at 70% and I’m starting on low-dose OFEV in about 10 days. I’m really concerned and frightened because I’ve heard from several people how terrible the side effects are. They’ve not offered me oxygen so I have no idea if that would help. I just moved so I’m going to join local the gym and force myself to treadmill it. It appears this disease reared it’s ugly head after my fourth bout with Covid. I’ve never ever suffered shortness of breath. I’ve always been active and healthy!I’m at a loss and so anxious. When I asked my previous Pulmonologist for prognosis, his words were “you don’t want to know.” How evil is that?

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