← Return to My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

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@nypara66

Once they get the meds at the correct dosage to keep her numbers down, usually phlebotomies become
Less frequent. I was at every month, then eight weeks and now after a year and a half on the meds, I went past four months! The dosage is likely to change here and there depending on her numbers but I haven’t heard of anyone with PV not needing them. Some can go without meds if their platelets are stable but still need the blood out. Hang in there. I wish I could drop the Hydroxyurea and just get the phlebotomies but my platelets jump as soon as it’s lowered. Hang in there!

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Replies to "Once they get the meds at the correct dosage to keep her numbers down, usually phlebotomies..."

A lot of folks talk about platelets, but my mom’s platelets are normal. Only hemoglobin and hemacrit were high