1St North American Bronchiectasis & NTM Patient Education Program

Posted by becleartoday @becleartoday, Aug 15 6:31am

⭐️1st North American Bronchiectasis & NTM Patient Conference⭐️

VIRTUAL & IN-PERSON

Sign up NOW for this informative event hosted by NYU Langone.
December can be hectic, so don't delay. Drop everything and sign up now for this FREE patient conference‼️‼️

I've personally benefited from attending these conferences year after year and highly recommend them. NYU Langone has a top-notch Bronchiectasis and NTM Program and I'm lucky to have them as my medical team. They are incredible clinicians and educators.⭐️⭐️⭐️
Let's make the most of this opportunity together! Sign up today‼️
https://nyulangone.zoom.us/webinar/register/WN_Q848ME4URUKZLEXMp-kLTg
Let me know if you have questions,
Linda Esposito

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

I watched/listened from home and thought it was very informative. I would have liked to attend in person, but I avoid going out in cold weather; I would be coughing uncontrollably by the time I got there! Maybe these meetings could be scheduled during warmer months??

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I watched the whole session live and I would love to discuss it after the holidays too! One of the biggest things I gleaned from the conference is that the cases of bronchiectasis is growing and we are not alone. Sometimes in my darkest times coughing and struggling I feel a deep sense of hopelessness about the rest of my life living with this condition but seeing that there are many dedicated health care professionals out there advocating for us through research helped me tremendously. It was very informative.

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Thank you for posting! You and the wonderful people in this group have offered me support I can’t find anywhere else!

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I watched the entire afternoon and look forward to watching it again. Thank you for posting the link, but I get a note saying that "This video is private." Anyone else have this problem?
Also, I noticed that on the first day there was a talk about BE and reflux. Sue, any idea if there is a way we could watch that?

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@yardsend

I watched the entire afternoon and look forward to watching it again. Thank you for posting the link, but I get a note saying that "This video is private." Anyone else have this problem?
Also, I noticed that on the first day there was a talk about BE and reflux. Sue, any idea if there is a way we could watch that?

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Red face here! Sorry, everyone, it looks like that might have been an unofficial copy of the video. Best I can tell, it has been removed or locked down.

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@sueinmn

Here's the link!
The recording is about 3 hours long, very fast-paced. I'm listening in segments.

For all of you who have been "wishing" for things like a list of doctors, a repository of documents, etc - they are on the way.
https://www.youtube.com/watch?app=desktop&v=Pr61jfiR7Q4

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Unfortunately, I followed the link and it says "not available. This video is private". 🙁

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I admire your enthusiasm, Sue!!! Look forward to watching and discussing, Linda

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No worries, everyone! I called Marla Hymes at NYU Longone and she said they took it down for editing and the video should be ready and available to us around the New Year! I'm sure most of you know this, but she said they have other videos at their site from NYU doctors on the subject.

nyulangone.org/ntmpatienteducation

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@paxmundi

No worries, everyone! I called Marla Hymes at NYU Longone and she said they took it down for editing and the video should be ready and available to us around the New Year! I'm sure most of you know this, but she said they have other videos at their site from NYU doctors on the subject.

nyulangone.org/ntmpatienteducation

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Please post the link to the video when it is available. Thank you for sharing it.

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