Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@kwcoop

Hass anyone tried Rife Therapy, it is a little expensive so I thought I would ask before commiting to purchase one.
Thanks
Kevin Cooper

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I haven't tried it but a quick search shows a few member comments on Rife Therapy - https://connect.mayoclinic.org/search/comments/?search=Rife%20therapy

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@michhino

I'm 58. I am a diabetic since 2017 (A1C 8.7 - 10.7)and peripheral neuropathy started with my feet (tingling, numb, painful nerve discomfort, etc..). Until this day(2024), I have been dealing with incurable, unmanageable, uncontrollable diabetes II and painful body peripheral neuropathy from feet, legs, waist and hands starting to become more and more numb. (especially feet) And fell 5 times as legs with dead as no longer functioned. This was the most terrifying and scary feeling as I thought became suddenly paralyzed from waist down. No feeling whatsoever! I quickly called my neighbor and was sat down on couch for hours until I started some feelings...

After all the doctors, neurologist, emergency rooms, hospitals, etc.. , plus prescribed medications (PR gabapentin/gabapentin, Juniva, Metformin, Duloxetine, etc.. I have purchased massagers, creams, and stuff on Amazon with help with PN at no avail....Sorry to say, I completely regret to spend thousands and thousands of dollars (Out of Pocket and/or Insurance) for PN not to mentioned PN. Not to mention, disability claims have been denied twice and must endure the pain at work without telling anyone...

After 8 years with such painful conditions, you DO NOT want the neuropathy (PN-nerve damage) to grow, spread and affect your entire feet, calves, thighs, waist and hands as it is an extremely terrible feeling along with an uneasy painful and frustrating state of mind, major anxiety, stress, nervousness with daily activities, etc.. And not to mention, impotent for the last 7 years and specialized doctor(s) want 20K to make you believe that they can help with it. I declined!

Sadly, advise for these serious mental and health complications and conditions were experienced as "NO CURE" ! The final solution mentioned by Neurologist was to amputate feet, and legs, and maybe hands. I could not live with myself with such a decision. I will continue to endure and suffer which I have accepted to convince mind this nasty discomfort is strictly a part of my remaining style way of my life.

As I feel discomfort and pain, I purchased a 3 year dog (German Shepherd) to help encourage, smile, and walk at least 4 times a week which helps body, muscles, and seldomly nerves. He is amazing! I seriously regret not adopting a dog many years ago...

Sadly, I found NO devices, creams, massagers, meds, specialist, doctors, etc. to ultimately eliminate nor majorly reduce the discomfort and sleepless nights of Peripheral Neuropathy not to mention diabetes II(except for short/long term insulin to lower blood sugars on a daily basis). Again, I molded and learned to ignore both awful symptoms as it has been a part of my life for years. An extremely sad way to live into your golden years.....

My advice is to eat healthy, "exercise', possibly adopt a pet for serious encouragement, and most definitely "Save your Money"…! As far as diabetes, I take insulin each day and eat healthy to help maintain blood sugars and when very low or high, PN brings out more of the dreadful and nasty pain in feet, legs and waist plus hands. And ultimately alters and brings extremely sad moments in my mind in which I try to fall asleep with sleepy pills and when at work must excuse myself some way to regain some control.........

It's likely they will remove my story cause doctors know diabetes and painful PN can not be cured !

My prayers are with all of you …

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Ask your doctor about Quetenza. Or Google it. It is one of the newest products for neuropathy pain. It works for me on the soles of my feet and the effects last 3 months. Then you must go to get the patch applied for the next 3 months. (You don't wear the patch. It comes off after the technician keeps it on for 40 minutes. ) Medicare pays for it. I have tried many products and it gives me a lot of relief. You will qualify, as you must be diabetic.
I am so sorry for the pain and frustration you are experiencing. Please investigate Quetenza to see if it is an option for you. I like that it is applied outside the body and does not go to the liver. I am done with all these pills that are not healthy for you.

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@dollydragon

Ask your doctor about Quetenza. Or Google it. It is one of the newest products for neuropathy pain. It works for me on the soles of my feet and the effects last 3 months. Then you must go to get the patch applied for the next 3 months. (You don't wear the patch. It comes off after the technician keeps it on for 40 minutes. ) Medicare pays for it. I have tried many products and it gives me a lot of relief. You will qualify, as you must be diabetic.
I am so sorry for the pain and frustration you are experiencing. Please investigate Quetenza to see if it is an option for you. I like that it is applied outside the body and does not go to the liver. I am done with all these pills that are not healthy for you.

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I just noticed you are 58 and not on Medicare. See if your current insurance will pay.

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