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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real...esp. Fibromyalgia. Doomed and damned by ignorance.

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Replies to "All I can say is I hope others have better experiences in getting help than I..."

That's what it is Ignorant people they don't have the pain or flare ups so they don't think the fibro exist you know I know everyone here I owe so don't listen to others,just take care of yourself let your rheumatologist help you and pain Dr.

Sucks, doesn’t it?

Ask for pain meds – you are instantly an addict looking for a high. It doesn’t matter if you are a grandmother that bakes cookies.

This is the reality we voted into place.

R

 

m a 75 year old Grandmother who cannot walk correctly, gets tired very fast and is in pain at all times. My grandkids will never know the real me. I turn 76 in April. I am so surprised I am still here. Amazing.

I am a 63 year old grandmother and I cannot do anything well. Walking is a sometimes ability. I just had surgery on my neck so I hope it will help with my upper abilities. I do NOT want my grands to remember me as their sickly grandmother. I am working hard to become the grandmother they deserve and the grandmother I always wanted to be. I waited to become a grandmother for a long time and right now I can't be her. I hope we both become that amazing, funny and loving grandma our grands deserve!!!

One of my previous pain docs did a urine test for drugs at each visit. I rarely take a pain pill, but when I need it, I take one. I usually take less than 5 a month. But now, after surgery, I take 1 or 2 a day. I am very aware of what I do where pain pills are involved. I am a food addict and I know all too well that it can transfer to other addictions.

@robbinr Everyone is suspect. It is difficult for those without pain to understand the ones that have pain. Being repetitive here-the honest pain for the crimes of criminals.

@oregongirl I feel the same about the grand kids. I do have a lot of love and they know thus. Saw them on Sunday and I do not talk about my pain with my son and his family. I never thought I would see 66 and had I continued listening to others who believed doctors were right I may not be. Some of the meds were poison to me, caused bone damage,cataracts in less than a year, constant shaking and drooling. I went from strong, energetic, high achiever, a job I loved to what I am now. I still am and this is what matters to me.

Its very normal to require a urine test. Even my PRIMARY did this recent;y. Doc just wants to know that the only drugs you have in your system is the drug he authorized for you. The pills don't do much good unless you take them regularily and before the pain begins. That is what I thought. You might ask him at next visit.

Yes, I am afraid of what the drugs I am receiving are not doing more damage to me. They are poison and are used for those with cancer. I have RA. I give myself a short once a week and go to Infusion when the doctor orders it.

Parus, STOP that thinking. You have another life to life. Just think of the people you will meet when you move. Life is not over yet. Move to a place where you can get the medical you need. If you go through Oregon, grab me some Marijuana. LOL