1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

oh_suzie_q | @oh_suzie_q | Feb 26, 2018
In reply to @parus "Well all of you people living in fibro land encouraging you to do your best and..." + (show)
@parus

Well all of you people living in fibro land encouraging you to do your best and what is in your comfort zone. It may mean a fairly lonely existence, but certainly (speaking for myself) better than flares. I do not even ask for pain medication as where I am it is viewed as drug seeking. I stay with the same primary care person as too much changing around or any at all now is viewed as drug seeking. Take an OTC is what they recommend. No need as if it does not help why take it-even as prescribed. In the area I live in prescribing of opioids is rare. Depression and PTSD are in my chart for all to see-it is the first thing in my chart. How far does anyone trying to get help for pain get taken seriously I am told to talk to a therapist. I have a UTI and still trying to see the PCP. Still waiting on a cancellation. So yes, in a fibro flare. There are times when I go to bed and hope not to awaken to another day. As you can see I have and hoping to get some help for the UTI. I don't even mention fibro as bels and whistles go off in the doctor's head that spell out drug-seeker when I have not once asked for them. They are firing patients now for even asking. I do see a pain specialist for trigger point injections which help for a few days. Insurance will only pay for every 6 months even though they only last a week or so. I am allergic to steroids and get shots of a numbing agent that help the muscles relax. So yes, I am rather discouraged right now. 🙁

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If it helps, why not try? It beats living in pain. I think we need to weigh our options. Hmmm pain vs. no pain. Its a no brainer for me. I can put away a little each month for proven methods that work. Other than drugs at all times. A combination is the key!

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oh_suzie_q | @oh_suzie_q | Feb 26, 2018
In reply to @lioness "I wish they did pay for homeopathic but not even herbal medicine.It is a shame but..." + (show)
@lioness

I wish they did pay for homeopathic but not even herbal medicine.It is a shame but the pharmaceutical companies are in for profits not holistic medicines

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Sad! Sounds like you a new doctor! She sounds rather closed minded. Yes, my Doc said I qualify as well and was happy to help me acquire. such red tape though!

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oh_suzie_q | @oh_suzie_q | Feb 26, 2018
In reply to @virtuous69 "@clownscrytoo My word,your story mimics mine to a T and probably many other members too. You..." + (show)
@virtuous69

@clownscrytoo
My word,your story mimics mine to a T and probably many other members too. You are so not alone. I take the same meds, am 70 years old and my spinal stenosis issues add to my pain. I too am a bed potato while I wait for the meds to kick in, and I lay on a heating pad for my lower back stenosis pain. Good thing you have an understanding husband.....so do I and that so helps. I take life one day at a time, cannot volunteer or do the hobbies I like. I stand on God's promises that He will come along side of me. I get physical therapy when a fibro knot or a degenerated spinal disc goes way out of whack. Sometimes I log into the "just want to talk" section of Mayo Connect because I need to vent. I notice that if I have a busy day, the next day is a total wash out. I try to run only one or two errands a day, and the next day I'm down for the count. I no longer feel ashamed. Trying to maintain good posture helps. Computer chair sitting can aggrevate. Drink plenty of fluids. Move when you can. When you can't, rest. May God bless you, show you favor and plenty of friends who understand. Sending you a basketful of love.
Victorious69 (Dori)

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Hope that it brings you the relief you are looking for! Best wishes for you! I know all about your trip and recovery. God's speed!

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Parus | @parus | Feb 27, 2018

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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20 replies
Gary, Alumni Mentor | @gman007 | Feb 27, 2018
In reply to @parus "Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side..." + (show)
@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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@parus, Does this post mean you attempted to get a script from a doc for something a little stronger than OTC? And with all you have going on physically, they would not even give you something low dose or non-narcotic?

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lioness | @lioness | Feb 27, 2018
In reply to @oh_suzie_q "I am so sorry you are suffering with this. I too have it! I have turned..." + (show)
@oh_suzie_q

I am so sorry you are suffering with this. I too have it! I have turned to some alternative medicine. None of the pain rubs helped! I found a natural one that is a dream and takes the pain and inflammation away!!! PM me and I can share the info and website. This company makes products for people like us! All natural though and they work!

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O-susie-q what is it?I do alot of alternatives

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lioness | @lioness | Feb 27, 2018
In reply to @parus "Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side..." + (show)
@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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Parus I'm bummed today ,fatigue and burning pain in thighs don't go together to well

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Gary, Alumni Mentor | @gman007 | Feb 27, 2018
In reply to @parus "Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side..." + (show)
@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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I am sorry for your pain today @lioness! I know that doesn't do a lot for the pain, but know I will say a prayer for relief and you are not alone. Take as much care as you are able, Gary

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Parus | @parus | Feb 27, 2018
In reply to @parus "Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side..." + (show)
@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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@gman007 None of the others have helped such as Gabapentin, Tramadol, antidepressants such as Cymbalta, Savella, Effexor and the list goes on. I was told to get out and walk to build muscle to help with my pain. I said nothing. Took the numbing agent shots which will help for about 3 days. Just say thanks and go back in 3 months for shots again. An insurance thing. Also told to continue seeing the therapist who has already said there is nothing more she knows to do. PT will not be covered by insurance. So yes, I am bummed. Not wallowing in self pity either. My pain is medical and x-rays show thus...I do not have a history of drug abuse nor psychosomatic pain. He suggested I take nauproxen with acetometophen. I don't think this would be healthy for my liver/kidneys. I have done so as recommended at last visit. No need trying to reason with a doctor. Insurance also has me restricted as to what docs I can see. Most are fearful of prescribing. Is what it is...

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Parus | @parus | Feb 27, 2018
In reply to @parus "Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side..." + (show)
@parus

Well, so much for anything stronger than OTC's. Guess I need to find the stalwart side of me. Get more exercise to strengthen my muscles. Guess I did not look or sound pathetic enough. It matters not. Rather bummed, but it is what it is.

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@lioness No this is not a good combo. I am having a lot of pain in my ribs as well as tingling all over. Hope things improve for both of us and others as well.

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