Scleroderma (Systemic Sclerosis): Anyone else?

Posted by kimberlyf @kimberlyf, Aug 18 2:14pm

Struggling with multiple issues

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@melody0808

Diagnosed with Systemic Sclerosis (Scleroderma) today. 48 yr old female
Any advice??

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What are your symptoms? I have very high antibodies to centromere so am being monitored. Some of us have high antibodies but symptoms don't match and some have symptoms but no positive blood work. How were you diagnosed and which kind of scleroderma? Was it your ScL antibody or centromere? Do you have skin symptoms?

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@melody0808

Diagnosed with Systemic Sclerosis (Scleroderma) today. 48 yr old female
Any advice??

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Welcome, @melody0808. I moved your comment about scleroderma to this existing discussion:
- Scleroderma (Systemic Sclerosis): Anyone else? https://connect.mayoclinic.org/discussion/sclerodermasystemic-sclerosis/

I did this so you can connect with members like @kimberlyf @robinlundblade @slkanowitz @mshutch and more.

Melody, this is a new diagnosis for you. Have you discussed management and treatment options with your team? What are the next steps?

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