Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Go up to the search bar and enter in Squamous cell cancer. It is one many people are diagnosed with, so there will be info. I will also look into this topic, as a family member had it.

Thank you. I’m waiting to do my PET scan. I guess I’m looking for others who have gone through this and may still be in the process.

Hi. In 2023, I was diagnosed with squamous cell cancer on my vocal cords. They were able to treat the cancer with radiation treatments. The radiation did what it was supposed to do and the cancer was removed. I have been getting checked every three months and there is no evidence of the cancer.

Good luck.

Thanks for your reply and am glad to hear that you are doing well for that gives me hope and a positive outlook

Three weeks ago I was diagnosed with cancer on my epiglottis. I'm here looking for anyone with the same diagnosis who is willing to share their experiences with me so I'll have some idea of what to expect.

Well, I had/have Base of Tongue Cancer with some spread into the Epiglottis. For the moment going to assume your doctors will recommend chemo and radiation as opposed to surgery, once you get a plan of action (surgery and/or chemoradiation), the great people on this support group will give you lots of insight on how it all works. Hang in there my friend!

Hi @williamanelsonjr. I add my welcome. I merged your 2 discussions into one in the Head & Neck Cancer support group where you'll find other members who have experience with supraglottic cancer begins in the upper portion of the voice box and includes cancer that affects the epiglottis, which is a piece of cartilage that blocks food from going into your windpipe.

I see you've already heard from @rsedlock1958 and @robolobo. I'm also tagging @duckdogg1943 and @mikecarroll1937 to bring them into the discussion.

William, this is a very new diagnosis. Have you had the discussion with your team about treatment options? How are you doing?

I was diagnosed with same cancer on the base of my tongue as well as in a lymph node on my neck. The good news is I am cancer free after almost 2 years. The Doctors told me. that this is a highly treatable and curable cancer. They were right.
What to expect?
I was given 35 doses of radiation over a 7 week period along with weekly chemo to work along side radiation. The 1st 3-4 weeks were not too bad. The last 3 weeks got progressively more painful to swallow as the radiation was doing its work.. I lost 43 pounds and lived off of Boost Hi Cal. vanilla. Drank as much water as I could but still needed daily hydration infusions.
When my treatment was completed I thought I would heal quickly and be back to normal quickly. It took me another 6 months beyond treatment to feel normalish. The radiation keeps doing its job weeks after the last treatment. I was tired a lot, still in pain, and nothing tasted good. I went back to work and somehow got through those days.
Ok so it is may seem like a long road, but I am stronger and healthier now than pre-cancer. I eat right, exercise, and have kept the weight off. My advice is take it a day at a time and even when you have been cured, still take everyday as a gift. It is. Best wishes and prayer for your recovery.

Just had my PET/CT scan last Thursday, just waiting now to hear from my treatment team.

Thank you for sharing your experience with me.