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← Return to Always run down with MGUS
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Ginger, thank you for your reply. I have just been diagnosed with MGUS in November this year. I have unbelievable fatigue. I am a very active 75 year old Nonnie that is busy every single day with house and yard and grandchildren and church and dance club and book club and supper club it goes on and on. I stay very busy. I just don’t even know how to adjust myself down to this pace. I’m so fatigued all the time I get up feeling OK and then do as much as I can but in two hours, I’m ready to take a rest. That’s not me. I don’t like it. This is really early for me and not much going on. They made this diagnosis and said come in six months to repeat Scan annd blood work. and if your spleen has enlarged more ( that was the only thing they found) They would do a bone marrow biopsy. This leaves me in the dark and concerned and probably worrying about things. I don’t need to be worrying about. I do eat a healthy diet. I have a good BMI and I walk every day a couple of miles and enjoy being outdoors. this is just a slap in the face for a woman who hasn’t even taken a prescription yet.!
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@4kleo I don't recall if I have welcomed you to Mayo Clinic Connect. If not, here it is!
When we are so used to having seemingly unlimited energy, to have a sense of fatigue can really throw us for a loop. Take some minutes to fix a cuppa tea, sit down and think through how you might be able to approach this now with a different outlook. Perhaps you have been always "doing for others", well, now "do for yourself". It's okay to revamp your schedule. And in the long run, you just might find that the newer, more relaxed version of you is a good thing. Does it take getting used to? Will you question it, or might your family and friends wonder? Oh, my yes!
Continue to eat healthy, get good rest, perhaps change your priorities a bit. MGUS is not a death sentence. And frankly, at 75 we have the right to listen to our bodies and back off a bit! I am 72 now, myself. The post you referred to is 4 years old. Since then, I have been on active treatment for multiple myeloma since August 2021, and on daily peritoneal dialysis since Sept 2022. Is my energy level where I would like to to be? No, but I have forgiven myself for that and learned to be gentle on myself, doing what fits each day. You'll get into the swing of things in a short time, I have no doubt.
It's a learning curve. Be gentle on yourself! Continue to keep in touch with me!
Ginger