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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@virtuous69

@clownscrytoo
My word,your story mimics mine to a T and probably many other members too. You are so not alone. I take the same meds, am 70 years old and my spinal stenosis issues add to my pain. I too am a bed potato while I wait for the meds to kick in, and I lay on a heating pad for my lower back stenosis pain. Good thing you have an understanding husband.....so do I and that so helps. I take life one day at a time, cannot volunteer or do the hobbies I like. I stand on God's promises that He will come along side of me. I get physical therapy when a fibro knot or a degenerated spinal disc goes way out of whack. Sometimes I log into the "just want to talk" section of Mayo Connect because I need to vent. I notice that if I have a busy day, the next day is a total wash out. I try to run only one or two errands a day, and the next day I'm down for the count. I no longer feel ashamed. Trying to maintain good posture helps. Computer chair sitting can aggrevate. Drink plenty of fluids. Move when you can. When you can't, rest. May God bless you, show you favor and plenty of friends who understand. Sending you a basketful of love.
Victorious69 (Dori)

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Replies to "@clownscrytoo My word,your story mimics mine to a T and probably many other members too. You..."

Hi!
Seems like so many of us have been suffering in much the same way as you. I am 63 (in a month) and retired on SSI.
I suffered from Fibro for over 30 years. After taking amitriptalyn (spelling?) to get into a deep sleep, loosing weight, exercising, chiropractor and massage therapy, my Fibro is well under control. The only time it bothers me is when some touches the hot spots or tried to undo the knots.
I also suffer from cervical and lumbar spinal stenosis as well as other issues with my spine. The pain was so bad that for over 2 years I basically stopped walking. I went to 5 pain docs and 3 years ago I found one who has been able to deal with my lumbar stenosis with injections, but no success with the cervical stenosis. I've decided to go the surgical route. In 2 weeks I am having the troublesome discs in my cervical spine removed and replaced with artificial ones.
I too, have a very understanding husband and family. I know longer do any household chores or cooking, my husband does it all. I too can only do a couple of chores outside the home. If I spend the day out, I am done for the rest of the day and the next one.
I continue to get shots in my lumbar to keep walking but I will probably do surgery for that as well. I am concerned about the amount of steroids I get and the impact on my bones, especially at my age.
Best wishes to us all!
ronnie

I,'ll pray for you ,I wish you the best hope this is your answer.When is your surgerh? If you want I,'ll add you to our prayer list I'm on? Linda

My PT taught me to constrict my muscles. It really helps the pain! Also stretching exercises. Ditto your story is me.

Helps greatly 30 yrs ago they also said isometric exercises . I live in a senior building we have stretching exercises so good makes you feel good.

What a beautiful email victoreous. I too rely on my Lord. My husband has gone home. Just think today he could see Jesus and Billy Graham . Wow! We will make it. God allowed this fir some reason. I think mine because he CD never get me to slow down and read His Word.

Hi!
Sorry it took so long to answer you.
I am actually scheduled for surgery next Wednesday morning. I am currently doing all the pre-op stuff. I pray this is the answer!
ronnie

Hope that it brings you the relief you are looking for! Best wishes for you! I know all about your trip and recovery. God's speed!