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Vaccine injury?
I'm wondering how many people on this blog/support group find a correlation between LC symptom onset with administration of a COVID vaccine. I had COVID in late August 2020 and still have little and altered taste and have never recovered my sense of smell. All other symptoms I recovered from after a few weeks (fatigue, SOB, musculoskeletal pain and inflammation, etc). After receiving the 2nd shot of the initial Moderna two-shot series in early March 2021 and contracting COVID like symptoms three weeks later (I took multiple tests, some resulting as negative, some as positive) that haven't gone away (except for fever which happens randomly but not a big problem for me). I'm curious if others have had similar experiences. The physicians I have seen since March 2021 have all denied a correlation or causation between vaccine and LC symptoms. I am open for any thoughts or research, if it is being done about LC potentially being a vaccine injury. Thank you in advance for your time and assistance.
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Hi debbie75. My circumstances similar w very different illness dec 2021, no access to covid test possible. Pcp urged second vaccine jan 2022. More increased reaction to it and then exposed to verified covid first of Feb, testing positive w available covid test that time🙃. It has been explained to me that my body probably was not tolerating the vaccine well due to my past ebv etc, and then immediate exposure to covid created my bodies overreaction causing long haul. Know everyone has different circumstances with health and reactions they experience and medical advice needed for each individual. Hope this helped shed some light of your question (hopefully my brain understood it lol) from the post covid clinics perspective I attended. Healing to you🌈
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1 ReactionYes, I never tested positive for Covid (and I was sick a lot, so I was tested multiple times), but I did have all 3 shots, and the first bivalent booster in 2022. It took a month or so for me to stop feeling like I had a cold after the first three, but the booster shot wrecked my system and I still haven't recovered.
I had health problems before I got the booster, but they were under control. Now I have POTS and a lot of pain and long Covid-like symptoms, on top of what I already had becoming unmanageable. I'm inclined to think I'm experiencing something autoimmune triggered by the vaccine because I already have conditions that are suspected to be autoimmune, but my ANA is always negative, so I'm stuck there.
It's only been in the last 3-4 months that I've had providers start acknowledging that they've seen other people whose symptoms started with the vaccine. Unfortunately, they also don't know what to do about it, and my tests always come back normal or very close to normal, so it never goes anywhere.
Yale's LISTEN study includes people who have been affected by the vaccine — they're not recruiting anymore, but they do have some limited information on it. Other than that, there's not a lot of other research out there besides case studies unfortunately, though there are quite a few of those.
I'm pro-vaccine, and I think I likely would have gotten long Covid if I'd been infected, so I don't regret getting it. Since the vaccine did trigger something though, I just want that thing to be treated, you know?
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2 ReactionsYes, all my LC symptoms began within weeks of my first and last Moderna booster in November ‘21. There’s plenty of anecdotal evidence connecting the vaccine with LC and plenty of Doctors and studies working to prove it.
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2 ReactionsI had a very similar experience. I had Covid in November 2021. I had been fine after all of my Pfizer vaccines, then I had a Moderna booster followed by another Moderna booster six months later. After the Moderna boosters I developed tingling in my legs, dizziness, vertigo, heart palpitations and other neuro problems. It took about a year for me to get better, but it will periodically flare, such as after a flu shot. They say my immune system may be on overdrive.
Here are some papers on vaccines and long covid. My 8 months of LC followed covid in March of 2023, no reactions to vaccines other than feeling wonky for a few days (my immune system is out to get me). https://www.science.org/content/article/rare-link-between-coronavirus-vaccines-and-long-covid-illness-starts-gain-acceptance#:~:text=Despite%20the%20uncertainties%2C%20German%20Minister,vaccination%20are%20a%20real%20phenomenon. https://pmc.ncbi.nlm.nih.gov/articles/PMC10849259/
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1 ReactionI have post long term covid vaccine syndrone. I have had it for 3 years. It has caused neuropathy and nerve damage. It goes in and out of remission and it is turning into an unknown immflamatory diseade and no one can help me.
@ww3. Check out Dr Bruce Patterson via YouTube. I learned of him via a post here on mayoclinic and decided to chase that rabbit. Struck me as so promising that I plunked down the $1,000 for a special design blood test as a “yes you have LC, no you don’t” and it sorts the cause into several root causes that have treatment regimens. Dr Patterson states the normal blood tests are useless for detecting LC and its causes but he believes he has developed tests that do. My $1,000 may end up being deductible but at this point I don’t care. A worthy roll of the dice for my health.