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Fibromyalgia pain: Let's connect
Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo
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My chiropractor made me hurt worse. I can't stand to have anyone oush hard on my body. I know it works fir many.
I was all set to move into an apt under thr affordable rent program,met income qualification but when I informed them that I paid rent for the lot where my 40 year old mobile home is I was considered ineligible. The mobile home needs repairs,etc. it is almost impossible to sell this one bath one bedroom manufactured home where rent is $842 a month with a rent increase every October. My rent increase was $40 a month last year. A buyer would have to pay $925 plush gas,electric.water,trash,sewer and pass through and recycle fees. That almost $1000 monthly. This is not a well kept mobilehome park and the owners live in Laguna Hills even the agent who oversees money spent for park maintenance lives inLakeside. Owners Bonita Paradise LLC corporation don't give a damn about people who make them rich. There are 182 homes and lots here so go figure .
Don't know if there is a cap?.right now Medicare premium in San Diego is $134 month but some income levels pay more based on incomes over a certain level..suggest you look/read the annual Medicare booklet published and mailed to those enrolled in Medicare . I believe you can request this publication from Medicare.
Liege
Yes I have appt. But not till March 16 I,'ll ask her about it thanks Linda
I can't take massages they hurt but my chiropractor doesn't ,crazy huh.
Everyone pays 134.00 for Medicare except those that make a higher s.s ,you can go to the S, S office for a Medicare booklet also that's where I got mine
The Infusions may be for RA only. But I don't why they would not use it on Fibromyalgia also. I think because Fibro could be so many things. But RA does have some common things. Most everyone with RA is using the same drugs. My feeling is that my RUMMI is trying everything to see what will work for me. I just know when I leave her office with that Steroid shot I am good to go all day long. I also receive the Steroid with the IV. What is it that you always hear not to use Steroids. What can they do you to. Anyone know? At least they are not Narcotics. But every doctor treat different test periods etc. One man who was in the Infusion room with me, goes everyday. I went every two weeks. I will be done next week. I will miss it. The guy who goes every week, calls it his Comfort measure. Whatever it takes. I have a referral to Pain Mgt now. Wonder what he will try. I must be cautious or double my pain with addiction. Believe me, if you have ever been addicted, you know what I mean. My doctor had me on Morphine. I stopped on my own and nearly died. Three nights in a row to ER. And now, my file reflects my addiction. GREAT..Doctor prescribes but it is my fault. The pain of coming off the morphine was horrible. I lived alone and my son helped me come down over the phone. Night and day, all the time on the phone with me. Than God I had him to talk to. The pain was almost to much to bear. I am surprised I did not have a heart attack. The 3rd night I told the abulance people to just let me die. No Doctor should ever do that to a patient. He knew, I didn't.
I know we pay that for our Medicare. AND, I have suppliment insurance which runs me nearly 250.00 a month now. Goes up every year. They would love to get rid of me. But, before I would give up my suppliment, I would skip one meal a day. I never pay a dime out in medical bills. But, I wondered if there is a cap that Medicare will pay? Like lifetime max $300,000 or something like that. I will go on line and see. I was self employed. I feel like my whole life, I worked just to keep my husband and I in good health insurance.
Audry..That is horrible. I lived in Oregon. I had an ocean view,3 bedrooms 2 baths, huge sunroom and garage. I sold it in 30 days. The part rent was $500.00. Park was clean and beautiful. I just could not believe my partner bought a mobile on a rented lot. For what we had, he could have sold it for 400,00 if it were not in a park. I sold it for 130,000. the rent goes up every year. You wait a few more years and my buyers will be paying a $1000 a month. I wish Audrey that you could go to your church and ask if someone needs a roommate. I know we all love to be alone. Thats me anyway. I am happy with myself and so disappointed in some people I have met in my life. I heard someone say today while talking about the boy who shot his classmates, that there is depression covering America. People are scared, depressed and don't know that the government will do next. When we get old, we are controlled by the drug industry. Retirement was great and I love to read and paint. Thank God when my husband was alive we traveled to Germany, Israel and Greece. Many Seniors will never see those places. I was blessed. But the the market in housing fell through. My beautiful 3 bedroom condo with across the street ocean was lost in foreclosure. My husband was a disabled Vet. I fought for 5 yrs to get my widows benefit. I could not afford to fight any longer. And,you what? The people who talked to m at VA were not even VETS. The VA was so screwed up. I should probably try one more time.
Audry, What will you do? You cannot live in a small place like that. You are ill, you need a larger airy place where you can rest. I wish I had all the money in the world. There are so many of us who could use a hand up when it comes to Retirement and illness. I will pray for you Audry.