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My wife has Parkinson’s disease. Can she participate in a research?
Parkinson's Disease | Last Active: Dec 16, 2024 | Replies (27)Comment receiving replies
He had spinal tap and skin punch but was not told results. He had some kind of scan, not sure of DAT type. He does not have PD as far as we know, though he has some precurser symptoms. He is a five year participant.
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Thanks for your reply. I dropped out before the spinal tap and 21 months later was diagnosed with PD (in Nov). I was having difficulty getting my results from PPMI but last night on their site, I found a way to view my results. I found a section that said if you want your results to click the link, ‘view your research information now’. Even if you agreed not to see your results or were assigned to the group that can’t see their results for two years, you can change your mind any time. I wish I had been told that as I would have started treatment 21 months ago if I had known the results.