1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

robbinr | @robbinr | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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I've been on Cymbalta for over 10 years, and had not noticed that it promotes weight gain. But then again, I've gained 20 pounds in the last year, which has made everything more difficult. Maybe it IS the Cymbalta, or the other combinations of meds that I use to get a measly 5-6 hours of uninterrupted sleep. I suggested that my PCP and my Rhuemy (who has been useless) sit down together and talk about a comprehensive plan, but that was vetoed. My hands and legs always shake and always have. Didn't know it wasn't normal. The Gummys won't hurt even if they don't help.

REPLY
Texas Freedom | @oregongirl | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

When will they approve Marijuana through out our Country. It is the drug companies holding it back. I move from Oregon where there is a shop on every corner. The first time I went in there, I saw more SENIOR than younger people. They separate the medical from the Recreational. The medical is stronger. My friend who has MS has almost a normal life. Actually two friends, they transferred from Calif to Oregon so her could get the medical Marijuana.

REPLY
wandamiller | @wandamiller | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

I agree. I live in N.Y. where its been legalized but its a long waiting list to actually get to see the Dr. Its also nearly unaffordable. I wish the insurance companies would pay for medical marijuana. We all know its better for us.

REPLY
Texas Freedom | @oregongirl | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

Oh yes. Kradom

REPLY
lioness | @lioness | Feb 2, 2018

Hello foxyjune. Im lioness a retired nurse Im so sorry for what you are going through. They have legalized Marijuana here in Calif now for recreational and medical. That's the reason I don't take perscreption meds ---to many side effects instead I have studied holistic herbs,homeopathtic med I have fibromyalgia 30 yrs diagnosed and have been having all symptoms the burning pain ,numbness,tingling muscles pain. After a lot of research I found what works for me is Magnesium about 1000 mg a day as we age our bodies are depleted of minerals not only with age but the soil is depleted so go organic if you can. I also take for sleep Calcium at night with Magnesium and Vit D3 5000 units. Within the mag is some other things and its called Fibro Malic from Vitacost or Amazon. I use a tens unit for muscle tightness. Ice ,heating pad and pace yourself. If you can find a warm water pool and do a little exercising All this has helped me . I understand you have more problems then me but these are suggestions I use that help me. Since I have a fractured back I cant do heavy work so have a housekeeper that comes in. But you can sign up for Meals on Wheels that will will help you . B less you hope you get some relieve.

REPLY
doxyjune | @doxyjune | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

I agree 100 percent. I think medical marijuana would help, not hurt. In NY it is hard to get it but I will start the process and maybe I will get lucky. Thanks for your input.

REPLY
doxyjune | @doxyjune | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

Hi robbinr, if you don't mind me asking what do you take to help you sleep? If you have been on Cymbalta for 10 years and this year you gained 20 lbs. then perhaps it isn't the Cymbalta for you?

REPLY
doxyjune | @doxyjune | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

HI Oregongirl, We have some supermarkets that will deliver. I may need to use them soon. I hope not, I try hard to keep some chores just to have some semblance of a what my life used to be like. I appreciate your suggestions and your prayers. Thank you.

REPLY
Texas Freedom | @oregongirl | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

Well remember the pharmacy does have Marijuana. At least my pharmasist told me. Dr has to prescribe. These states are crazy that are holding off. The tax income to State of Oregon is out of this world. Also Oregon had NO sales tax.

REPLY
lioness | @lioness | Feb 2, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

Hi Calif just legalized for recreational they have had medicinal . In Hollywood the first dispencery just opened. Im now near there but have the CBD capsules

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