Fibromyalgia pain: Let's connect

Family members who can't see your pain can be cruel. I so hope that the infusions are helpful and are making a significant improvement to your health. I spent 6k one year at a Fibro clinic for IV meds twice a month that were basically a Very Expensive Enema. They just ran right through me, leaving my gut a wreck. When someone says that they have a headache you can't see it, but we've all had one and we know that it hurts. I tell my family about my illness only if they specifically ask. When my brother asked and I told him it felt like I had a bad case of Flu ALL the Time, he said, "I'd just shoot myself." Thanks Bro! Often with friends they don't understand when you cancel or can't do something with them. Those folks just stop being your friends. It is no loss. We have to have compassion for ourselves and for those who don't understand and say cruel things. If my husband says, "I didn't understand which thing you were complaining about." to me one more time...to the Moon! One small vindication for me was I finally got an MRI on my right shoulder. For two years I thought it was just Fibro pain, but the AC is torn and hanging by a thread. Papercuts and broken bones feel the same to me. Chin up, eyes ahead. You are brave and dealing with it - that is what matters. Remember what they say about opinions, everyone has them just like other parts of their anatomy:}

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

I prefer to go alone. I cannot stand noises that come out of my son when I am explaining my pain. He says, now wait a minute mom, don't confuse doctor. I was ready to strangle him. Lord knows he has been to Drs. Maybe o will go on his next appt and do the same to him. But that is not me

I prefer to go alone. I cannot stand noises that come out of my son when I am explaining my pain. He says, now wait a minute mom, don't confuse doctor. I was ready to strangle him. Lord knows he has been to Drs. Maybe o will go on his next appt and do the same to him. But that is not me

I have Fibromyalgia and have suffered with symptoms all my life. Now it's caught up with me & I'm losing the battle. I take Gabapentin for pain and my RLS. It does help with the RLS and so i don't want to change, but I've gained 50 pounds because of the side effects. I hate not being able too do what i used to and now i hate who i am weigh all this weight and no help too get it off. I have almost every symptom of Fibromyalgia and am still trying to work full time. And this last month I've hit a me problem that you all need to be aware of. I take hydrocodone and my term life insurance came due so i was going to convert it to whole life. I've been turned down for any policy with this company soley because i use hydrocodone. This witch hunt on opiates has gone too far!

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.