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Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

janet111 | @janet111 | Jan 28, 2018

Hey clownscrytoo....if you have not found Arnicare Gel, I recommend it 100%. Janine

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2 replies
lioness | @lioness | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Hi I just had a flare up ,now on Prednisone 5mg but start with 3then2now 1so 2more days and that will be it.Oregongirl for my fibromyalgia stared 30 years ago The dr.medicine are,nt good for me Research shows we need more Magnesium I take Fibro Malic during day magnesium Malete at night ,before bed calcium to sleep as we get older ,we need more minerals I found this has helped me more then anything.Other things that help,tens unit relaxes the muscles,hot bath with Epsom salts put soft music and relax before bed.Hope this will help.

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LynneB | @lynneb2110 | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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@oregongirl, it just crushes me to hear you report this about your son and daughter in law. I had an ex-husband who used to feel this way about my depression.
While I would certainly get therapy if I were you, I would also enlist the help of your docs to help bring your kids around. You are so well-spoken and knowledgeable about so much, it seems incredible that they hold some pretty ignorant attitudes. Family support is so important. See if you can bring them with you to a dr visit, but after you have already talked with the doctor or therapist about what will be said to them. They need to be read the riot act. I can’t imagine, do they think these aren’t legitimate illnesses, or do they not believe you have them?
Blessings on your head, OregonGirl. I want things to get better for you.
Xoxo Best,
Lynne

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Texas Freedom | @oregongirl | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Lynneb2. Your words are the kindest words I have had in last 6 months. They don't believe me. Every time I feel down I will read your words. I am on methotrexate by shot I give myself once a week. Taking the pills caused terrible vomiting me . My son and DIL believe the doctor does not know what she is doing. And my illnesses are in my head. I am also going to receive infusions. Now I ask you what Dr WD do this for the fun of it?

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lioness | @lioness | Jan 28, 2018
In reply to @janet111 "Hey clownscrytoo....if you have not found Arnicare Gel, I recommend it 100%. Janine" + (show)
@janet111

Hey clownscrytoo....if you have not found Arnicare Gel, I recommend it 100%. Janine

Jump to this post

I,'ll second that It really works

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lioness | @lioness | Jan 28, 2018
In reply to @oregongirl "Yes I am seeing a rheumatologist. I cannot explain their behavior." + (show)
@oregongirl

Yes I am seeing a rheumatologist. I cannot explain their behavior.

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Good it is a shame another's attitudes ,they need to see your Dr.As Lynne said

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Parus | @parus | Jan 29, 2018

I would that things would improve for all of us. Fibro is not for wimps nor is depression/anxiety/old age. Cannot surrender to self pity lest I become even more alienated from the busy world. I do not mention fibro as I fully know the eye-roll thing. I know I push too hard at times and then pay for doing so. Perform well for others and they expect it all of the time. I can understand how it appears I am faking. I even tell myself I am and I know it is not true as I do not have a history of laziness. Largest part of the problem is that it happened so quickly. People know the vibrant, engaging person I once was and wonder why I am pretending to be hurting. I cannot eat like others and have found some get offended as they see me as wanting attention. Enough chronic negativity from this chronic pain body.

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2 replies
Parus | @parus | Jan 29, 2018
In reply to @oregongirl "I know as my legs can only take so much. My kids are on me constantly..." + (show)
@oregongirl

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

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Anyone with fibro knows that alcohol does not mix with this illness as it does make pain worse.

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Parus | @parus | Jan 29, 2018

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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8 replies
Texas Freedom | @oregongirl | Jan 29, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

Jump to this post

Oh I agree on the Epson baths. Soooo good. I am not certain why a cancer drug works on RA. I believe it has something to do with our blood.

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