1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Texas Freedom | @oregongirl | Jan 26, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Parus,. My heart goes out to you. I wish I could come and take you to lunch. Today I am having a good day. I am cautious to say that. I am just sleepy. Bi can fall asleep the minute I hit the pillow. I just got over a couple of weeks with a flare. Parus, do you have any days without pain? I mean I know we all have underlying pain that we have just gotten used to. My prayers are with you. My srt work just sits there. Then one day I will pick it up again.

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trueheart | @trueheart | Jan 26, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Hi was I supposed to get parus email I am new to how this works I started on here 4or5 days ago could someone tell me how stuff o I not kidding did you see what I type but anyway I feel so sad for all or pain I will say when I was young and I thought I had tough that day I see someone in a wheelchair than I thought l don't have it so bad all most my hole life I tried not to think I had tough before the surgery after surgery I started to think I had I tough guess what I didn't see people in a wheelchair as much the moral of story is something was tell to do my best I an disabled now I still try to do my best

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Hi TrueHeart,
You are doing fine on Connect. Connect is built on discussion forums. When you get an email notification, click VIEW & REPLY and you will see the entire discussion, not just a single reply. When you respond, your message goes to everyone who has been taking part in the discussion. It's like a support group online.

Learn more about how to use Connect here: https://connect.mayoclinic.org/get-started-on-connect/

REPLY
Texas Freedom | @oregongirl | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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I need to seek therapy over my diagnosis of RA. My kids refuse to believe I have any pain. This morning I was dressed and ready for church. I suddenly had a terrible flare and went to my room and slept for about two hrs. My very mild pain pill makes me sleepy. I am going to speak to my Dr about all of this. My daughter in law asked me if this could all be in my mind. How sad. Does anyone have this issue and what did you do? My son went with me to my first race visit. He refuses to believe what he had heard and thinks Dr is using me for tests.

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Texas Freedom | @oregongirl | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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I am seeing Dr in University offices. I have had two reports from two doctors stating I have RA. I had a friend who has a very severe fibromyalgia. She had to sleep all day. We worked to get care for her two young children during the day. Her husband would not believe her. Similar to my issues.

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kellye5 | @kellye5 | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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I am so sorry you are going through this and more disappointed in some of our medical professionals when progress has been made. I have debilitating fibro and CF...it is not in your mind and is totally miserable. I am working with an integrated MD now because western meds alone have not worked well. Don't give up but rest when needed. This is a nice support here.

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lioness | @lioness | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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People can't see our pain as well as some Dr.,s We do have chronic pain ,have you gone to a rheumatologist? They will be able to help you ,this is a good group to discuss our pain

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Parus | @parus | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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@oregongirl Thank you. I do art work when I can. The past few days have been worse pain wise. I have a hard time sleeping and this does not help. I have other pain as well as fibro. It is the fibro that has me stifled for the time being. I always have pain and at times it increases. Is what it is. I am trusting for some sleep. Take care.

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Texas Freedom | @oregongirl | Jan 28, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

Jump to this post

Kelly. Thank you. Well I was told my kids are just denying my illness, it will go away. But it hurts. I thot you wait until you get older.

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Texas Freedom | @oregongirl | Jan 28, 2018

Yes I am seeing a rheumatologist. I cannot explain their behavior.

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