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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)

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@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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Replies to "All I know to do is keep trudging on. Some days are better than others. Thankful..."

@oregongirl, it just crushes me to hear you report this about your son and daughter in law. I had an ex-husband who used to feel this way about my depression.
While I would certainly get therapy if I were you, I would also enlist the help of your docs to help bring your kids around. You are so well-spoken and knowledgeable about so much, it seems incredible that they hold some pretty ignorant attitudes. Family support is so important. See if you can bring them with you to a dr visit, but after you have already talked with the doctor or therapist about what will be said to them. They need to be read the riot act. I can’t imagine, do they think these aren’t legitimate illnesses, or do they not believe you have them?
Blessings on your head, OregonGirl. I want things to get better for you.
Xoxo Best,
Lynne

Lynneb2. Your words are the kindest words I have had in last 6 months. They don't believe me. Every time I feel down I will read your words. I am on methotrexate by shot I give myself once a week. Taking the pills caused terrible vomiting me . My son and DIL believe the doctor does not know what she is doing. And my illnesses are in my head. I am also going to receive infusions. Now I ask you what Dr WD do this for the fun of it?

Oh I agree on the Epson baths. Soooo good. I am not certain why a cancer drug works on RA. I believe it has something to do with our blood.

Yes I love Epsom salts bath.I have another problem besides fibro ,I have a fractured back the L 2in 2005 ,now I have pain in my upper thighs all the time Dr.t.says it's my nerves coming from lower back to legs ,the only relief I get is Arnica gel

@oregongirl, do you have other friends who are able to support you, perhaps from a church circle or a support group? I wonder if you can insert them in your life in place of where your kids (meaning both son + DIL) ought to be? If your are able to take comfort in that kind of support, I imagine it might help. A lot.
I’m still in favor of therapy for you. If you think you need it, you do.
I’d find articles that talk about family support for these illnesses, and how important it is. How some people fail to recognize that their loved ones’ pain is legitimate. Also, articles on the illnesses themselves. Symptoms, diagnosis, treatment. It might or might not help convince them.
And NO doc would do that for fun. Just using you for tests, did your son say? That’s...deplorable.

My DIL

Hi oregongirl,just go and listen to your rheumatologist then when you get treated with the shot Humira I think it is ,when your family sees how much better you are ,then they will have to believe you.we all have to take our diseases by the ,bull of the horn

I know my dr would not treat something that is not real.