Parus,. My heart goes out to you. I wish I could come and take you to lunch. Today I am having a good day. I am cautious to say that. I am just sleepy. Bi can fall asleep the minute I hit the pillow. I just got over a couple of weeks with a flare. Parus, do you have any days without pain? I mean I know we all have underlying pain that we have just gotten used to. My prayers are with you. My srt work just sits there. Then one day I will pick it up again.

Hi was I supposed to get parus email I am new to how this works I started on here 4or5 days ago could someone tell me how stuff o I not kidding did you see what I type but anyway I feel so sad for all or pain I will say when I was young and I thought I had tough that day I see someone in a wheelchair than I thought l don't have it so bad all most my hole life I tried not to think I had tough before the surgery after surgery I started to think I had I tough guess what I didn't see people in a wheelchair as much the moral of story is something was tell to do my best I an disabled now I still try to do my best

Hi TrueHeart,
You are doing fine on Connect. Connect is built on discussion forums. When you get an email notification, click VIEW & REPLY and you will see the entire discussion, not just a single reply. When you respond, your message goes to everyone who has been taking part in the discussion. It's like a support group online.

Learn more about how to use Connect here: https://connect.mayoclinic.org/get-started-on-connect/

I need to seek therapy over my diagnosis of RA. My kids refuse to believe I have any pain. This morning I was dressed and ready for church. I suddenly had a terrible flare and went to my room and slept for about two hrs. My very mild pain pill makes me sleepy. I am going to speak to my Dr about all of this. My daughter in law asked me if this could all be in my mind. How sad. Does anyone have this issue and what did you do? My son went with me to my first race visit. He refuses to believe what he had heard and thinks Dr is using me for tests.

I am seeing Dr in University offices. I have had two reports from two doctors stating I have RA. I had a friend who has a very severe fibromyalgia. She had to sleep all day. We worked to get care for her two young children during the day. Her husband would not believe her. Similar to my issues.

I am so sorry you are going through this and more disappointed in some of our medical professionals when progress has been made. I have debilitating fibro and CF...it is not in your mind and is totally miserable. I am working with an integrated MD now because western meds alone have not worked well. Don't give up but rest when needed. This is a nice support here.

People can't see our pain as well as some Dr.,s We do have chronic pain ,have you gone to a rheumatologist? They will be able to help you ,this is a good group to discuss our pain

@oregongirl Thank you. I do art work when I can. The past few days have been worse pain wise. I have a hard time sleeping and this does not help. I have other pain as well as fibro. It is the fibro that has me stifled for the time being. I always have pain and at times it increases. Is what it is. I am trusting for some sleep. Take care.

Kelly. Thank you. Well I was told my kids are just denying my illness, it will go away. But it hurts. I thot you wait until you get older.

Hi I just had a flare up ,now on Prednisone 5mg but start with 3then2now 1so 2more days and that will be it.Oregongirl for my fibromyalgia stared 30 years ago The dr.medicine are,nt good for me Research shows we need more Magnesium I take Fibro Malic during day magnesium Malete at night ,before bed calcium to sleep as we get older ,we need more minerals I found this has helped me more then anything.Other things that help,tens unit relaxes the muscles,hot bath with Epsom salts put soft music and relax before bed.Hope this will help.