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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)

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@oregongirl

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

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Replies to "I know as my legs can only take so much. My kids are on me constantly..."

Hi I don't know what pain you feel but and not a doctor but maybe a change diet might help and more salad frozen veggies lean meat back in 1996 my sister died of cancer I told myself eat healthy well was able 40 miles on bike and jog 12 miles and do pliait well that was a long time ago. I became a vegetarian for a year in half I did find out that eating just veggies was good I got light headed . My dad had dieibies and used his blood test and it was down to 40 I figured I better eat a little more sugar and protein shake like I said earlier I'm not doctor I just remembered what my dad said about doctors he goes do you know why they call it practicing medicine you are like a ginepig they practice on you ha ha ha of I was just joking I don't mean any disrespect. I hope you try to have a nice day

I mean eating just veggies is not good. PS I don't type much is the most I type I 5years my fingers are to big for these little letters. And l don't know about emojis and simbyls for word

Well, Fibro pain is what it is. I take pain meds. But the bigger issue is interstitial pulmonary fibrosis. No treatment. No plan. Prognosis...5 years. So if you could help with that, I'd really, from my heart, appreciate it. Thank you Manya

Keep it up. Your doing fine.

Hi thank you for tell me I guess I will tell you about the pain I have the thing is I don't take pain med I just have a lot of pain I after surgery did take nuroton a nerve med for a few month and a had three teeth out it made my teeth hurt bad and did help with my back so I stopped take it I had a tumor in side my spine and thought it was a back ache and I had what I thought was a back ache for two years people asked in those if I was ok I always said yes I am ok I thought a little back wouldn't slow me down. I sure was wrong and before the surgery I was in denial about the pain I didn't want to give up it took my legs arms go num and legs go purple and couldn't stand falling to time to go doctor ...I in pain so skip some things. I can't type this long. Back to story. At the time I didn't know that a tumor was in spine cord blocking blood flow through out my nervice system yes I was in bad shape I was life in death stuff I didn't n have a long to live I had to have surgery I didn't just have a back ache well I had surgery and found out or Google right 10,000 people have spine tumor and and live pass a certain amount of years I the 28 % that live I talk to probably 100 or more people with normal back surgery but I have yet met someone who has had spine tumor

O I don't take pain med and if I didn't vow not to drink alcohol over 14 years ago I would of try alcohol but what I found out about a vow the longer you keep it it seems the stronger you get and that was a very good vow I in pain every day I take one day at a time that my life Trueheart

I am so sorry, Megh.. I am praying for you. I have to look your illness up to better understand it.

Hi I don't know if you where talk to meg or me it came to my email I not only here a few days these last few days is the most I type on never. I type slow can't spell good and before when I work I could work a 120week working sweat (two years before surgery ) I bearly was on internet talk to anyone I was always working on sorry if you were talking to meg then me

I feel for you! I hear those words all the times, and I only tell myself, that the person wants me to get better and does not understand the pain.

Anyone with fibro knows that alcohol does not mix with this illness as it does make pain worse.