1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

capefibro | @capefibro | Jan 19, 2018
In reply to @kellye5 "I wish in many ways I could retire...disability is on the table. I adore my job..." + (show)
@kellye5

I wish in many ways I could retire...disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

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So sorry to hear, I know the anxiety of a parent with a sick child. My son got Crohn's disease as a teen, very tough, now a tough adult, my hero. Lucked into a clinical trial after a few years of very bad stuff. You may want a therapist for your child/family to deal with it, was very helpful and my wife and I are both therapists LOL. I hope things go well for you all.

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capefibro | @capefibro | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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I'll take any blessings I can get!

We have similar symptoms but our bodies react differently. I've taken a ton of magnesium glycinate, Jigsaw, good brand, no effect on anything. Also salve, onto shelf with dozens of failed supplements and meds.

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jlfisher56 | @jlfisher56 | Jan 19, 2018
In reply to @jenapower "I’m not sure what you’re asking to purchase because you don’t state it, if it’s the..." + (show)
@jenapower

I’m not sure what you’re asking to purchase because you don’t state it, if it’s the patches that are being talked about I don’t know. If you’re talking about the Theracane, I bought it at a medical supply store that’s in my doctors office building. I have also seen them online, I believe at Amazon. If you Google them you’ll find them. If you want it right away go to a medical supply store. I’d call first to make sure they have it.

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I used to buy them in the drug store, Walmart, etc.

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jlfisher56 | @jlfisher56 | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Pray you get help and answers. Please post. Been finding so many articles on chronic fatigue and the new name for it. Watch TED on youtube. (CFS is often now called ME) Myalgic encephalomyelitis (ME); a wonderful speaker Jennifer Brea who was going for her Doctorate (has this) gives a great presentation and a wonderful explanation of it and what science has discovered.

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lioness | @lioness | Jan 19, 2018
In reply to @kellye5 "I wish in many ways I could retire...disability is on the table. I adore my job..." + (show)
@kellye5

I wish in many ways I could retire...disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

Jump to this post

So sorry to hear about your child.Hope he/she finds some relief.Stay strong.

REPLY
lioness | @lioness | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

Jump to this post

Glycanate
didn't help me either but Magnesium hydroxide(yields 86mg elemental magnesium ) does ,we know what helps one may not others that's why we have to research.Therecane Jennapower has this information.

REPLY
jenapower | @jenapower | Jan 19, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

Jump to this post

Here’s the info on where to order the Thera Cane or you can get it at a medical supply store.
Hope this helps, I like mine a lot.
http://www.theracane.com/mobile/

REPLY
lioness | @lioness | Jan 20, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

Jump to this post

Thank you It lie good I will looking into ordering it .Maybe it will help my thighs and shoulders .Someone said they used Flexiril but I,d rather use massage for this the TENS helps but I don't like putting it on my neck.Thanks again

REPLY
Parus | @parus | Jan 20, 2018
In reply to @kellye5 "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...." + (show)
@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

Jump to this post

Flexiril also causes dry mouth. Have not had thus in years.

REPLY
Parus | @parus | Jan 20, 2018

Hello again fibro folks. I have learned that diet plays an important role for me. Cold weather is a rough time, but this cannot be helped. Also the dropping barometric pressure. Thankful I can still do some art work for distraction. My rice bags are also some of my best friends. Keep on keeping on y'all! Like reading what others are doing to deal.

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