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DiscussionFibromyalgia pain: Let's connect
Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)Comment receiving replies
Replies to "HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues...."
Yes it does. Alas.
My rheumatologist had told me that flexeril helps some fibro sufferers with the all-over pain. I don’t love flexeril, especially at first, but the side effects wear off pretty quickly (for anyone who is considering trying it).
I was watching a Doctor Dan Claw, Director of Pain and Fatigue Center of the University of Michigan. Explanations and reasons why drugs work in fibromyalgia ...due to "chemicals/transmitters" in the brain are the main focus. He is not "happy" with opioids for fibromyalgia and has seen positive clinical trials of cannabis but hasn't done any himself. I am surprised because yesterday a fellow pain member in our group thought a doctor gave him an anti-depressant called Tramadol. I told him it isn't and is a synthetic narcotic. This doctor uses it in fibromyalgia because it acts as a "weak anti-depressant" (like Savella/Cymbalta he stated) "gamma hydroxybutyrate".which I question. Savella is a selective serotonin and norepinephrine reuptake inhibitor which is why some anti-depressants work in fibromyalgia. Black box warning came out a few years ago for Ultram/Tramadol because as a synthetic narcotic, people were told it was non-addicting and IT WAS! There was talk of taking it off the market but they didn't. Lots of info about what happened is on the net but I never heard of it being marketed as an weak "anti-depressant". I am sure the Clinician is excellent but as he states, he never has felt "pain" so it is very hard in my mind to be sympathetic and empathetic to people suffering with it! He does have good medical info though if you want to watch on YouTube.
I've taken Tramadol and Tylenol, the combo in Ultram, for five years for severe FM pain. Consultants I've seen have confused it with Tofranil (antidepr), Triavil(antidepr), and numerous other meds beginning with T! Doctors don't know much about meds or nutrition! Tramadol is a weak junior opioid that somewhat operates in the endocanbabinoid system, unlike morphine or other opioids. It is only marginally effective for me, takes edge off, but not addictive. I've stopped it for a few days with no problem, just increasing pain. I've tried oxycodone but all it does is knock me out and not relieve pain. Pain management is a tough endeavor that you think medicine would have figured out by now but they haven't. They can make you a zombie but keeping you functional while relieving severe pain...only for a few fortunate people, just depends on individual chemistry.
I've suffered
From dry mouth for years ,also dry eyes ,wonder if this goes along with fibro like he CFS ?anyone know?