1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Nanci | @nancirae | Jan 7, 2018
In reply to @parus "@clownscrytoo I am in one of my lows and lack energy to even think about doing..." + (show)
@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

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I have had fibro for at least 30 years. All I have taken is  flexerol at bed time. It helps me to sleep all night. I have had to take pain meds after some surgeries and they absolutely do not help fibro. There is nothing out there that helps it except you have to move. Laying around does not help it. They have proven that excerise is the only thing that helps. Water excerise is the best. Try it , you might feel better.

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speechgal | @speechgal | Jan 17, 2018

Has anyone tried using a theracane for pain relief?

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2 replies
Parus | @parus | Jan 19, 2018

Saying hello to the fibro folks and encouraging all to do your best-This goes for me as well.
Trying to encourage myself by encouraging others.

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lioness | @lioness | Jan 19, 2018
In reply to @speechgal "Has anyone tried using a theracane for pain relief?" + (show)
@speechgal

Has anyone tried using a theracane for pain relief?

Jump to this post

What is this,never heard of it? Therecane?

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lioness | @lioness | Jan 19, 2018
In reply to @parus "@clownscrytoo I am in one of my lows and lack energy to even think about doing..." + (show)
@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

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I like you have had fibromyalgia for 30yrs. We need 8 hrs deep sleep for our muscles to relax.I will ask my Dr.about Flexeril ,is this a muscle relaxer or sleeping pill?I do take about 1000 mg of magnesium a day this helps me .

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jlfisher56 | @jlfisher56 | Jan 19, 2018

I used to use Thermacare pain patches for the neck and low back in 2003 and worker com paid for them. I decreased my pain medication. When I started with skin breakdown, no longer could I use them. Now I use Teracin pain patches that are much smaller (menthol---cool, lidocaine---numb, and capsaicin but doesn't burn), and do have to change skin sites because my skin will start to become sensitive with continued application. Thermacare is heat and now the cool works better for my nerve pain also. Best of luck!

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2 replies
wandamiller | @wandamiller | Jan 19, 2018
In reply to @parus "@clownscrytoo I am in one of my lows and lack energy to even think about doing..." + (show)
@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

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Flexeril is a muscle relaxer

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jenapower | @jenapower | Jan 19, 2018
In reply to @speechgal "Has anyone tried using a theracane for pain relief?" + (show)
@speechgal

Has anyone tried using a theracane for pain relief?

Jump to this post

I have a Theracane and use it daily. It allows you to hook around to your back or other areas that are hard to reach and put pressure on those muscles or triggerpoints. I think it helps a lot. The only problem is if you get too carried away pushing hard, then you may be sore afterwards. I highly recommend the cane if you are someone who likes the feeling of having your triggerpoints pushed on.

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kellye5 | @kellye5 | Jan 19, 2018

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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15 replies
kellye5 | @kellye5 | Jan 19, 2018
In reply to @parus "@clownscrytoo I am in one of my lows and lack energy to even think about doing..." + (show)
@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

Jump to this post

I was on Magnesium for years and my IBS became uncontrollable and I had to come off:(

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