1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

robbinr | @robbinr | Feb 15, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

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<br><br><br><br><br><br><br><br>I was diagnosed with Fibro in 1995 after spending many years wondering why I was so tired and hurt all over.<br>Recently, I had a really long flare of pain, but as it started to subside I felt like all my joints were sore and swollen.<br>As the swelling started to recede, I have had a couple of weeks of bladder urgency (no pain). I can’t go an hour without a bathroom.<br>Has anyone else had something like that happen?<br>Robbinr<br> <br><br><br>

REPLY
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Feb 16, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

Hello @robbinr. I was unable to find anyone else who has talked about this experience on Connect. However, with a little research, I don't think your situation is unique. Although brief, here is an article from PubMed, https://www.ncbi.nlm.nih.gov/pubmed/26259883.

REPLY
robbinr | @robbinr | Feb 16, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

<br><br><br><br><br><br><br><br>Wow, thanks Justin,<br>That is amazing to find such detailed a survey.<br>Regards,<br>Robbin<br> <br><br><br>

REPLY
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Feb 16, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

I wish I could take all of the credit, but we have to thank @colleenyoung for the heavy lifting.

REPLY
wandamiller | @wandamiller | Feb 16, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

Does anyone have any idea how to get rid ar at least alleviate inflammation? I feel like my body is burning itself up from inside. <br>

REPLY
wandamiller | @wandamiller | Feb 16, 2017
In reply to @andilynn "Wanda, I'm so sorry you have to struggle with this awful illness. Check out the 4-7-8..." + (show)
@andilynn

Wanda, I'm so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.

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I'll check it out. I'm sick of it all. My family and friends dont understand it. They think im a hypochondriac. Lately I've been suffering from inflammation everywhere. Even my stomach! Istarted getting horrible squeezing pain around my stomach area. Ive had enough! Test after test..I'm tired!

REPLY
Kelly, Alumna Mentor | @kdubois | Feb 17, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

The acupuncture I've been doing since early January also alleviates my inflammation. The term they use is actually called internal "heat" that they are helping the body release.

REPLY
robbinr | @robbinr | Feb 17, 2017

One little known inflammatory is artificial sugars, like Splenda or Sweet-n-Low. I've known folks to stop using those and have a complete reversal of inflammation. Pears are supposed to be anti-inflammatory. Don't give up! It is just a mystery to be solved. Robbinr

REPLY
2 replies
robbinr | @robbinr | Feb 17, 2017
In reply to @basslakeview "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..." + (show)
@basslakeview

I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)

I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.

After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.

Jump to this post

<br><br><br><br><br><br><br><br>The use of Moxa is very effective for inflammation when getting acupuncture. Thanks for the reminder on how effective acupuncture is! Robbinr<br> <br><br><br>

REPLY
michiganstressedlady | @michiganstressedlady | Feb 25, 2017
In reply to @andilynn "Wanda, I'm so sorry you have to struggle with this awful illness. Check out the 4-7-8..." + (show)
@andilynn

Wanda, I'm so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.

Jump to this post

I have had fibro now for 12 years , it showed it s ugly head about a year after my husband died , I have tried a ton of meds and most do not work well or they make me sick ,,,, I am allergic or have bad reactions to most medications ...I do take hydrocodone/acphiminom 2 a day one in the morning and half about 4 pm and another half at night with clonazepam and vit D and aspirin and atorvastatin for cholesterol , I wanted to say that fibro is notorious for making people not react well with meds, I have heard it is a typical symptom, also does anyone here get swollen hands in the mornings or when they lay down ? I just started this and never had this problem before but now its terrible , my fingers feel like small sausages in the morning or when I lay down for a nap which I dread doing because I have to start the 2 hr process all over again of waking up , but if I don't I am just to tired to function. My hands and arms hurt so badly I have a hard time even moving in the morning ......About your stomach area, my Dr says that fibro can also react with muscles in your stomach area and isn't just our outer muscles that we usually feel the most , but I have had stomach pain every morning for years , and the Dr told me to take one Imodium AD , sometimes I take two ,,,it stops the stomach pain and works really well.....and it doesn't constipate me , you could try it though as it is inexpensive and may help you . Check first that it wont effect any of your other medications . Lots of love and peace from pain to all .

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