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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: May 9 4:21pm | Replies (1332)Comment receiving replies
I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!
Replies to "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..."
Swamme08 This may sound weird but, when I was diagnosed with Fibromyalgia, nothing would help the pain except a hot bath. But, when they found out I had RA I was put on a drug used for RA and my paid has subsided. The first few weeks of the new drug I thought I was going to die. I could not eat and kept throwing up. I was taking the pill form of the drug. Now I will be giving myself injections and receiving Infusions 4 times a year. 4 times as that is an Insurance thing I guess. These infusions are not cheap, They are bout 16 Hundred dollars each time. I might be wrong, they are more than that I think. But, I never had any relief until I got this drug going in my body.
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Hello @trueheart, You are in the right screen. The timelines in these discussions can be confusing, for me as well. The discussion itself was started in 2016, but many members are still discussing in real-time. The best advice I can give is it is always best to reply on the website and not via email reply. If you are getting email notifications, I recommend always clicking on VIEW & REPLY and it is much easier to know who you are replying to and when. I hope this helps explain the times a bit more.