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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)

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@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

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Replies to "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..."

wow, I wondered what was making me gain weight when I hardly eat. I take Amitryptaline at night to help me sleep. It works great. But, I am sure it is addictive.

Two things we want ,get rid of pain ,and o be made comfortable.If this works for you then that's all that counts.

@oregongirl, amitryptylene may or may not require a tapering process, as many antidepressants do. I know my Effexor does. Just as a side note, that’s not the same as opiate addiction. If you for any reason are wondering whether it’s the right medication to help you to sleep with (for instance, weight gain), ask your doc when you go. If you elect to come off of it, he or she can advise you on a taper schedule if it’s necessary for that particular drug.
Xo
Lynne

Thank you Lynn

@taterjoy Unfortunately, a cure can't be found until medical researchers know what the disease underlying fibromyalgia syndrome is. Fibromyalgia is not a disease. Where we are now: "Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals." (Mayo Clinic website under Fibromyalgia) There's more about neurotransmitters that you can read.

I'm up in years. During my last appointment, I discussed with my primary-care physician that, by the time researchers discover what the disease is and drugs are developed to treat it, I'll already be gone from the earth. On the bright side, some of you youngsters may benefit from the research. But for now we have to find ways to cope and even make ourselves feel better. Doctors can only manage the symptoms with medication.